Management Board

RC nameCountryCityRepresentative
Cliniques universitaires Saint-LucBelgiumBrusselDominique Maiter
Hôpital Universitaire de Bruxelles (HUDERF-Erasme)BelgiumBrusselAglaia Kyrilli
UZ BrusselsBelgiumBrusselInge Gies
UZ AntwerpenBelgiumEdegemChristophe De Block
Ghent University HospitalBelgiumGhentMartine Cools
UZ LeuvenBelgiumLeuvenKristina Casteels
Centre Hospitalier Universitaire de LiègeBelgiumLiegeAlbert Beckers
USHATE “ACAD IVAN Penchev”BulgariaSofiaSabina Zaharieva
UMHAT “Sveta Marina” (Varna)BulgariaVarnaVioleta Iotova
General University Hospital in PragueCzechiaPragueMichal Krsek
University Hospital MotolCzechiaPragueZdenek Sumnik
Aarhus University HospitalDenmarkAarhusClaus H. Gravholt
Copenhagen University Hospital, RigshospitaletDenmarkCopenhagenAnders Juul
Odense UniversitetshospitalDenmarkOdenseHenrik Christesen
Tartu University HospitalEstoniaTartuVallo Tillmann
HUS Helsinki University Hospital, Hospital District of Helsinki and Uusimaa (EndoERN_FIN)FinlandHelsinkiCamilla Schalin-Jäntti
Assistance Publique – Hôpitaux de MarseilleFrance MarseilleThierry Brue
CHU AngersFranceAngersPatrice Rodien
Hospices Civils de LyonFranceLyonGérald Raverot
Assistance Publique – Consortium Cochin, Robert Debré, Necker, St Antoine, La Pitié Salpétrière, Trousseau University HospitalsFranceParisJérôme Bertherat
Assistance Publique – Consortium Pitie Salpêtrière – French Reference Centre for Prader-Willi SyndromeFranceParisChristine Poitou
Hôpital BicêtreFranceParisPhilippe Chanson
Reference centre for rare diseases of calcium and phosphate-HEGPFranceParisPascal Houillier
CHU ToulouseFranceToulouseGwenaelle Diene
University Hospital AachenGermanyAachenThomas Eggermann
Charité Universitätsmedizin BerlinGermanyBerlinPeter Kühnen
Katholisches Klinikum BochumGermanyBochumCorinna Grasemann
Universitaetsklinikum Duesseldorf, AöR, Klinik für Allgemeine Pädiatrie, Neonatologie und KinderkardiologieGermanyDüsseldorfThomas Meissner
University Hospital Essen – Center for Rare Endocrine DiseasesGermanyEssenDagmar Fuehrer
Hannoversche Kinderheilanstalt, Diabetes Centre for Children and AdolescentsGermanyHannoverFelix Reschke
Universitätsklinikum Schleswig-HolsteinGermanyLubeckOlaf Hiort
Otto-von-Guericke University, Med. Faculty – Central German Network for Rare diseasesGermanyMagdeburgKlaus Mohnike
University Medical Center MainzGermanyMainzDirk Prawitt
Ludwig-Maximilian-University MunichGermanyMunchenNicole Reisch
Universitätsklinikum TübingenGermanyTübingenGerhard Binder
Universitätsklinikum Ulm (Ulm University Medical Center)GermanyUlmMartin Wabitsch
University Hospital WürzburgGermanyWuerzburgMartin Fassnacht
Aghia Sophia Children’s HospitalGreeceAthensChristina Kanaka-Gantenbein
Evangelismos General HospitalGreeceAthensDimitra-Argyro Vassiliadi
General Hospital of Athens “LAIKO”GreeceAthensEva Kassi
Semmelweis UniversityHungaryBudapestMiklos Toth
Beaumont Hospital & Children’s Health IrelandIrelandDublinMark Sherlock
IRCCS Azienda Ospedaliero-Universitaria di BolognaItalyBolognaAlessandra Gambineri
Azienda Ospedaliero Universitaria di FerraraItalyFerraraMaria Chiara Zatelli
Meyer Children’s Hospital FlorenceItalyFlorenceSonia Toni
University Hospital FlorenceItalyFlorenceCsilla Gabriella Krausz
IRCCS Istituto Giannina Gaslini, GenovaItalyGenovaMohamad Maghnie
IRCCS Ospedale Policlinico San Martino – Genova – ItalyItalyGenovaDiego Ferone
AOU policlinico “G.Martino” MessinaItalyMessinaSalvatore Cannavò
Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, MilanoItalyMilanGiovanna Mantovani
Istituto Auxologico Italiano – Istituto di Ricovero e Cura a Carattere ScientificoItalyMilanLuca Persani
Ospedale San RaffaeleItalyMilanGianni Russo
AOU di ModenaItalyModenaVincenzo Rochira
Antonio Cardarelli Hospital- Azienda Ospedaliera di rilievo nazionaleItalyNaplesFrancesco Scavuzzo
AOU Università degli Studi della Campania “Luigi Vanvitelli”, NapoliItalyNaplesKatherine Esposito
Azienda Ospedaliera Universitaria “Federico II”, NapoliItalyNaplesAnnamaria Colao
Azienda Ospedaliera di Padova (AOP)ItalyPadovaPietro Maffei
Obesity and Lipodystrophy Centre, Endocrinology Unit, Azienda Ospedaliero Universitaria PisanaItalyPisaFerruccio Santini
Azienda Unità Sanitaria Locale-IRCCS of Reggio EmiliaItalyReggio EmiliaChiara Grasselli
Azienda Ospedaliero-Universitaria Policlinico Umberto IItalyRomaAndrea Lenzi
Azienda Ospedaliero Universitaria Città della Salute e della Scienza di TorinoItalyTurinRoberta Giordano
AOUI di VeronaItalyVeronaFranco Antoniazzi
Hospital of Lithuanian University of Health Sciences Kauno KlinikosLithuaniaKaunasRasa Verkausiene
Centre Hospitalier de LuxembourgLuxembourgLuxemburgMarianne Becker
Amsterdam UMCNetherlandsAmsterdamPaul van Trotsenburg
University Medical Center GroningenNetherlandsGroningenMelanie van der Klauw
Leiden University Medical CenterNetherlandsLeiden Nienke Biermasz
Maastricht University Medical Center – Center for Thyroid CarcinomaNetherlandsMaastrichtBas Havekes
Radboud University Nijmegen Medical Center – including Amalia’s children HospitalNetherlandsNijmegenHedi Claahsen
Erasmus MC: University Medical Center RotterdamNetherlandsRotterdamErica van den Akker
University Medical Center Utrecht – Dept of Endocrine OncologyNetherlandsUtrechtGerlof Valk
Máxima Medisch CentrumNetherlandsVeldhovenKarin Blijdorp
Maria Sklodowska-Curie National Research Institute of Oncology (MSCNRIO)PolandGliwiceJolanta Krajewska
Saint John Paul II Upper Silesian Child Health Centre, Public Clinical Hospital no.6 of the Medical University of Silesia in KatowicePolandKatowiceAneta Gawlik
Karol Jonscher’s Clinical Hospital of Poznan University of Medical SciencesPolandPoznanMarek Niedziela
Public Pediatric Teaching HospitalPolandWarsawAgnieszka Szypowska
APDP – Diabetes PortugalPortugalLisbonJoão Raposo
Unidade Local de Saúde de Santa Maria(ULS de Santa Maria)PortugalLisbonEma Lacerda Nobre
Centro Hospitalar Universitario de São João, EPEPortugalPortoElisabete Rodrigues
Spitalul Clinic de Psihiatrie “Prof. dr. Alexandru Obregia”RomaniaBucharestDana Craiu
Institute of Oncology “Prof dr. Ion Chiricuta” CLUJ NAPOCARomaniaCluj-NapocaDoina Piciu
Spitalul Clinic de Urgenta pentru Copii, Cluj-NapocaRomaniaCluj-NapocaSimona Bucerzan
Spitalul Clinic Judetean de Urgenta Cluj (Cluj County Emergency Clinical Hospital)RomaniaCluj-NapocaCarmen Emanuela Georgescu
University Medical Centre LjubljanaSloveniaLjubljanaPrimoz Kotnik
Fundacio de Gestio Sanitaria Hospital de la Santa Creu i Sant PauSpainBarcelonaAnna Aulinas
Hospital Sant Joan de Déu BarcelonaSpainBarcelonaRoque Cardona-Hernandez
Hospital Universitari Vall d’HebronSpainBarcelonaMaria Clemente
Hospital Universitario CrucesSpainBilbaoNuria Valdes
Complejo Hospitalario Regional Virgen del RocíoSpainSevillaAlfonso Soto Moreno
Sahlgrenska University HospitalSwedenGothenburgGudmundur Johannsson
Karolinska University HospitalSwedenStockholmAnna Nordenström
Last update: July 8, 2025 on 07:37
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