European Patient Advocacy Group

European Patient Advocacy Group

Main thematic group Country Patient Organisation
Adrenal Denmark Addison Foreningen Danmark
Adrenal The Netherlands Dutch Adrenal Society NVACP
Disorders of Calcium & Phosphate Homeostasis France HypoparathyroidismeFrance
Disorders of Glucose & Insulin Homeostasis Italy ASS.A.I. Onlus
Disorders of Glucose & Insulin Homeostasis Italy AILIP ( Italiana Lipodistrofia)
Genetic endocrine tumour syndromes Germany German Network of Pituitary and Adrenal Diseases
Genetic endocrine tumour syndromes United Kingdom Association for multiple endocrine neoplasia disorders (AMEND)

Growth Germany BKMF e.V. (Federal Association for People of Short Stature and their Families)
Growth Italy A Fa DOC (Association of patient’s families with deficit of growth factor and similar disorder)”
Pituitary The Netherlands Dutch Pituitary Foundation
Pituitary Italy Associazione Italiana Displasia Setto Ottica eIpoplasia del Nervo Ottico

Disorders of sex development & maturation

Germany AGS-Eltern- und Patienteninitiative e.V.
Disorders of sex development & maturation United Kingdom Turner Syndrome Support Society

Thyroid The Netherlands Schildklierkanker werkgroep (SON)
Main thematic group Country Network
Adrenal Europe AdrenalNET