Steering Committee

Steering Committee

Main Thematic Groups (MTG)

MTGExpertiseNameCountryOrganisation
1 AdrenalPaediatricSvetlana LajicSwedenKarolinska University Hospital
1 AdrenalAdultNicole ReischGermanyLudwig-Maximilian-University Munich
1 AdrenalePAGJohan BeunNetherlandsDutch Adrenal Society NVACP
1 AdrenalePAGManuela BrösamleGermanyAGS-Eltern- und Patienteninitiative e.V.
1 AdrenalePAGJette KristensenDenmarkAddison Foreningen Danmark
1 AdrenalePAGAlessandro LazzeriniSpainSpanish Association of Congenital Adrenal Hyperplasia (CAH)
2 Disorders of Calcium & Phosphate HomeostasisPaediatricAgnes LinglartFranceHôpital Bicêtre
2 Disorders of Calcium & Phosphate HomeostasisAdultLars RejnmarkDenmarkAarhus University Hospital
2 Disorders of Calcium & Phosphate HomeostasisePAGMartha KirchhoffGermanyPhosphatdiabetes e.V.
3 Genetic Disorders of Glucose & Insulin HomeostasisPaediatricThomas DanneGermanyHannoversche Kinderheilanstalt, Diabetes Centre for Children and Adolescents
3 Genetic Disorders of Glucose & Insulin HomeostasisAdult and PaediatricPietro MaffeiItalyAzienda Ospedaliera di Padova (AOP)
3 Genetic Disorders of Glucose & Insulin HomeostasisePAGValeria CorradinItalyAILIP (Ass.ne Italiana Lipodistrofia)
3 Genetic Disorders of Glucose & Insulin HomeostasisePAGMarina ValentiItalyASS.A.I. Onlus
4 Genetic Endocrine Tumour SyndromesAdultAttila PatocsHungarySemmelweis University
4 Genetic Endocrine Tumour SyndromesePAGPetra BruegmannGermanyGerman Network of Pituitary and Adrenal Diseases
5 Growth & Genetic Obesity SyndromesAdultGudmundur JohanssonSwedenUniversity of Göteborg
5 Growth & Genetic Obesity SyndromesPaediatricIrene NetchineFranceAssistance Publique – Consortium Cochin, Robert Debré, Necker, St Antoine, La Pitié Salpétrière, Trousseau University Hospitals
5 Growth & Genetic Obesity SyndromesePAGPatricia CarlGermanyBKMF e.V. (Federal Association for People of Short Stature and their Families)
5 Growth & Genetic Obesity SyndromesePAGNathalie FerardFranceAssociation Grandir
5 Growth & Genetic Obesity SyndromesePAGElisabetta FreoItalyA Fa DOC (Association of patient’s families with deficit of growth factor and similar disorder)
5 Growth & Genetic Obesity SyndromesePAGBerit OtterleiNorwayLandsforeningen for Prader-Willis Syndrom
6 PituitaryAdultNienke BiermaszNetherlandsLeiden University Medical Center
6 PituitaryePAGJohan de GraafNetherlandsDutch Pituitary Foundation
6 PituitaryePAGDiana VitaliItalyAssociazione Italiana Displasia Setto Ottica eIpoplasia del Nervo Ottico
7 Sex Development & MaturationPaediatricOlaf HiortGermanyUniversitätsklinikum Schleswig-Holstein
7 Sex Development & MaturationAdultLuca PersaniItalyIstituto Auxologico Italiano – Istituto di Ricovero e Cura a Carattere Scientifico
7 Sex Development & MaturationePAGManuela BrösamleGermanyAGS-Eltern- und Patienteninitiative e.V.
7 Sex Development & MaturationePAGArlene SmithUnited KingdomTurner Syndrome Support Society
8 ThyroidPaediatricJuliane LégerFranceAssistance Publique – Consortium Cochin, Robert Debré, Necker, St Antoine, La Pitié Salpétrière, Trousseau University Hospitals
8 ThyroidAdultEdward VisserNetherlandsErasmus MC: University Medical Center Rotterdam
8 ThyroidePAGBeate BartèsFranceVivre sans Thyroide

 

Work Packages (WP)

WPExpertiseNameCountryOrganisation
1 Education & TrainingPaediatricVioleta IotovaBulgariaUMHAT “Sveta Marina” (Varna)
1 Education & TrainingAdultCamilla Schalin-JänttiFinlandUniversity of Helsinki
1 Education & TrainingePAGManuela BrösamleGermanyAGS-Eltern- und Patienteninitiative e.V.
1 Education & TrainingePAGPetra BruegmannGermanyGerman Network of Pituitary and Adrenal Diseases
2 E-Health & ICTPaediatricFaisal AhmedUnited KingdomNHS Greater Glasgow and Clyde Board
2 E-Health & ICTAdultDomenica TaruscioItalyIstituto Superiore di Sanità
2 E-Health & ICTePAGJohan BeunNetherlandsDutch Adrenal Society NVACP
3 Research & ScienceAdultJerome BertheratFranceAssistance Publique – Consortium Cochin, Robert Debré, Necker, St Antoine, La Pitié Salpétrière, Trousseau University Hospitals
3 Research & ScienceePAGJohan de GraafNetherlandsDutch Pituitary Foundation
4 Quality of Care & Patient ViewPaediatricAnna NordenströmSwedenKarolinska University Hospital
4 Quality of Care & Patient ViewAdultSusan WebbSpainHospital de la Santa Creu i Sant Pau
4 Quality of Care & Patient ViewePAGJette KristensenDenmarkAddison Foreningen Danmark
4 Quality of Care & Patient ViewePAGDiana VitaliItalyAssociazione Italiana Displasia Setto Ottica eIpoplasia del Nervo Ottico
5 Diagnostics & Laboratory AnalysisPaediatricAnders JuulDenmarkCopenhagen University Hospital, Rigshospitalet
5 Diagnostics & Laboratory AnalysisAdultGeorge MastorakosGreeceAretaeio Hospital