Steering Committee

Steering Committee

Main Thematic Groups (MTG)

MTG Expertise Name Country Organisation
Adrenal Paediatric Svetlana Lajic Sweden Karolinska University Hospital / Karolinska Institutet
Adrenal Adult Felix Beuschlein Germany Ludwig-Maximilian-University Munich
Adrenal ePAG Johan G. Beun The Netherlands Dutch Adrenal Society NVACP
Adrenal ePAG Manuela Brösamle Germany AGS-Eltern- und Patienteninitiative e.V.
Adrenal ePAG Carole Delorme France Association Surrénales
Adrenal ePAG Jette Kristensen Denmark Addison Foreningen Danmark
Disorders of Calcium & Phosphate Homeostasis Paediatric Agnes Linglart France Hôpital de Bicêtre
Disorders of Calcium & Phosphate Homeostasis Adult Lars Rejnmark Denmark Aarhus University Hospital
Disorders of Glucose & Insulin Homeostasis Paediatric Thomas Danne Germany Kinderkrankenhaus auf der Bult Hannover
Disorders of Glucose & Insulin Homeostasis Adult Andrew Hattersley United Kingdom University of Exeter
Disorders of Glucose & Insulin Homeostasis ePAG Marina Valenti Italy ASS.A.I. Onlus
Genetic Endocrine Tumour Syndromes Paediatric Jo Blair United Kingdom Alder Hey Children’s NHS Liverpool
Genetic Endocrine Tumour Syndromes Adult Attila Patocs Hungary Semmelweis University
Genetic Endocrine Tumour Syndromes ePAG Petra Brügmann Germany German Network of Pituitary and Adrenal Diseases
Genetic Endocrine Tumour Syndromes ePAG Jo Grey United Kingdom Association for multiple endocrine neoplasia disorders (AMEND)
Growth & Genetic Obesity Syndromes Paediatric Irene Netchine France CHU Paris Est – Hôpital d’Enfants Armand-Trousseau
Growth & Genetic Obesity Syndromes Adult Gudmundur Johannson Sweden University of Göteborg
Growth & Genetic Obesity Syndromes ePAG Patricia Carl Germany BKMF e.V.
Growth & Genetic Obesity Syndromes ePAG Elisabetta Freo Italy A Fa DOC
Pituitary Paediatric Mehul Dattani United Kingdom UCL Institute of Child Health & Great Ormond Street Hospital
Pituitary Adult Nienke Biermasz The Netherlands LUMC
Pituitary ePAG Johan de Graaf The Netherlands Dutch Pituitary Foundation
Pituitary ePAG Diana Vitali Italy Associazione Italiana Displasia Setto Ottica e Ipoplasia del Nervo Ottico
Sex Development & Maturation Paediatric Olaf Hiort Germany Universitätsklinikum Schleswig-Holstein
Sex Development & Maturation Adult Luca Persani Italy IRCCS Istituto Auxologico Italiano
Sex Development & Maturation ePAG Manuela Brösamle Germany AGS-Eltern- und Patienteninitiative e.V.
Sex Development & Maturation ePAG Arlyne Smyth UK Turner Syndrome Support Society
Thyroid Paediatric Michel Polak France Assistance Publique – Consortium Pitie Salpêtrière Hospital, Necker Enfants Malades Hospital, Institut Mutualiste Montsouris
Thyroid Adult Robin Peeters The Netherlands ErasmusMC
Thyroid ePAG Marika Porrey The Netherlands Schildklierkanker werkgroep (SON) / Thyroid Cancer Alliance

Work Packages (WP)

Work Package Expertise Name Country Organisation
Education & Training Paediatric Violeta Iotova Bulgaria MHAT “Sveta Marina”
Education & Training Adult Camilla Schalin-Jäntti Finland University of Helsinki
Education & Training ePAG Manuela Brösamle Germany AGS-Eltern- und Patienteninitiative e.V.
Education & Training ePAG Petra Brügmann Germany German Network of Pituitary and Adrenal Diseases
E-health & ICT Paediatric Faisal Ahmed United Kingdom South Glasgow University Hospital
E-health & ICT Adult Domenica Taruscio Italy Istituto Superiore di Sanità
E-health & ICT ePAG Johan Beun The Netherlands Dutch Adrenal Society
Research & Science Paediatric Martine Cools Belgium Ghent University Hospital
Research & Science Adult Marta Korbonits United Kingdom Barts Health – NHS Foundation Trust
Research & Science ePAG Elisabetta Freo Italy A Fa DOC (Association of patient’s families with deficit of growth factor and similar disorder)”
Research & Science ePAG Johan de Graaf The Netherlands Dutch Pituitary Foundation
Quality of Care & Patient View Paediatric Anna Nordenström Sweden Karolinska University Hospital / Karolinska Institutet
Quality of Care & Patient View Adult Susan Webb Spain Hospital de la Santa Creu i Sant Pau
Quality of Care & Patient View ePAG Carole Delorme France Association Surrénales
Quality of Care & Patient View ePAG Jette Kristensen Denmark Addison Foreningen Danmark
Quality of Care & Patient View ePAG Diana Vitali Italy Associazione Italiana Displasia Setto Ottica e Ipoplasia del Nervo Ottico
Diagnostics & Lab Analysis Paediatric Anders Juul Denmark Copenhagen University Hospital, Rigshospitalet
Diagnostics & Lab Analysis Adult George Mastorakos Greece Aretaeio Hospital