Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
CPMS 2.0 is now live – you will find more information including training
resources here.
The Clinical Patient Management System (CPMS) is a secure web-based application to support European Reference Networks in the diagnosis and treatment of rare or complex conditions across national borders.
CPMS will realise one of the ERNs core tasks; bringing expert specialised care to all patients in Europe.
The system will allow for virtual consultation across national borders, ensuring that the needed expertise can travel to the patient, instead of the other way around.
ERNs are not directly accessible to individual patients. However, with the patients’ consent and in accordance with the rules of their national health system, patient cases can be referred to the relevant ERN member in their country by their local physician.
Find out more about cross-border healthcare
The Endo-ERN Operational Helpdesk has created short manuals for the use of the CPMS. Webinars about CPMS will also be available here, just as information about the official CPMS information. You can also download CPMS consent forms here. Or contact the Endo-ERN CPMS helpdesk by mail.
Login Clinical Patient Management System
Via the CPMS any doctor can ask for virtual consultation of Endo-ERN reference centres. This IT platform will enable a multidisciplinary team (MDT) to discuss highly specialised patient cases in a secure closed-off environment. The resulting advice can then be directly referred back to the patient by their own treating physician.
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