Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
For genetic disorders of glucose and insulin homeostasis 3 subthematic subgroups are defined:
All guidelines for disorders of insulin and glucose homeostasis recommend education in glucose monitoring, diet and pharmacologic treatment with insulin and/or other medication during paediatric long-term care. The purpose of our network is to provide modern, evidence-based care through a multidisciplinary approach to children and adolescents suffering from a rare form of diabetes, hyperinsulinism or lipodystrophy. These include patients with an exceptional cause of diabetes (e.g. insulin-receptor mutations) , patients with severely unstable and/or difficult to treat diabetes (e.g. neonatal diabetes), patients with uncommon comorbidities (e.g. WABB syndromes).
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