Endo-ERN Patient Representatives ePAG

Adequate patient representation and coverage of all Main Thematic Groups, and preferably also of the Work-Packages across all member states is top-priority for Endo-ERN.

ePAGs will bring together elected patient representatives and affiliated organisations who will ensure that the patient voice is heard throughout the ERN development process. Patient organisations can become ePAG member organisations and patients can become ePAG representatives.

How to become an Endo-ERN patient representative 

Endo-ERN patient representatives:

Adrenal:

• 

  Johan Beun
  Johan G. Beun
  Patient representative for the Dutch Adrenal Society NVACP, representative of the board, The Netherlands

• 

  Manuela Brösamle
  Manuela Brösamle
  Patient representative for the AGS-Eltern- und Patienteninitiative e.V., Secretary, Germany

Disorders of Calcium & Phosphate Homeostasis:

Genetic Disorders of Glucose & Insulin Homeostasis:

Genetic endocrine tumour syndromes:

Growth:

Pituitary:

Disorders of sex development & maturation:

Thyroid

Is your patient organisation interested in becoming an ePAG member organisation? Or are you interested in becoming an ePAG patient representative?

Please contact the Endo-ERN Coordinating Center