The patient view and voice are implemented at the core of Endo-ERN activities. European Patient Advocacy Group Patient Representatives (ePAGs) are represented in all Main Thematic Groups and preferably also within the different Work-Packages that have been devised to tackle the different goals within Endo-ERN. It is our aim for our patient representatives to represent the different member states within Endo-ERN.
For more information on how Endo-ERN includes patient view in its activities, contact our work package leaders.
ePAGs will bring together elected patient representatives and affiliated organisations who will ensure that the patient voice is heard throughout the ERN development process. Patient organisations can become ePAG member organisations and patients can become ePAG representatives.How to become an Endo-ERN patient representative
Endo-ERN patient representatives:
MTG1 Adrenal






MTG2 Disorders of Calcium & Phosphate Homeostasis

MTG3 Genetic Disorders of Glucose & Insulin Homeostasis

MTG4 Genetic Endocrine Tumour Syndromes

MTG5 Growth & Genetic Obesity Syndromes



MTG6 Hypothalamic and Pituitary Conditions


MTG7 Sex Development & Maturation



MTG8 Thyroid
WP2 Dissemination

WP3 Evaluation

WP4 CPMS


WP5 Other Digital Activities



WP6 Education and Training



WP7 Standards of Quality of Care




Is your patient organisation interested in becoming an ePAG member organisation? Or are you interested in becoming an ePAG patient representative?
Please contact the Endo-ERN Coordinating Centre