Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
Rare adrenal disorders comprise those with hormonal oversecretition and/or overgrowth and those with inappropriate low endocrine functionality. While oversecretion and tumour growth often requires surgical or targeted medical therapy, patients with adrenal insufficiency are in need of specialized care for hormonal replacement therapy. In all cases, specialized endocrine diagnostic approaches with baseline and dynamic tests are necessary. In many instances these are substituted by dedicated functional imaging procedures, invasive hormonal analyses and/or targeted genetic testing and counselling. In cases of malignant adrenal tumors specialized multidisciplinary teams are required for personalized therapy decisions.
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