Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
As of 2023 all ERNs must assess how active our network HCPs are as members of Endo-ERN. The creation of this system was a mandatory exercise issued under the latest ERN grant funding our network, starting October 2023.
The HCP Performance System should reflect how our different members contribute to our network and easily indicate compliance with minimum membership requirements. This evaluation exercise should inform the next 5-year Evaluation members will go through, and reduce the amount of data gathering necessary for members.
What is the HCP Performance System?
The HCP Performance System is a scoring system that gives points to members that complete network activities.
This information comes from different sources shown above. The Performance System is designed so no additional data collection should be necessary from members beyond the normal Continuous Monitoring Exercise.
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