Endo-ERN was present at the 4th ERN Conference

Endo-ERN was present at the 4th ERN Conference on 21 and 22 November in Brussels, Belgium! We were present with ten delegates from five different countries. Both adult and paediatric endocrine experts, as well as patient representatives, attended the event. The lively conference featured two full days of presentations and debates, driven by plenary sessions and eight parallel workshops. Continue reading

The current landscape of European registries for rare endocrine conditions

On behalf of Endo-ERN the publication on ‘The current landscape of European registries for rare endocrine conditions’ was recently posted in the European Journal of Endocrinology. The objective was to identify international registries led from Europe for rare endocrine conditions and to understand the extent of engagement with these registries within Endo-ERN. Continue reading

Quality of Care Standard for Adrenal Disorders

Over the past three years a quality of care standard for adrenal disorders has been developed and was recently listed in the Register of the Dutch National Health Care Institute in September 2018. The standard was initiated by the consortium AdrenalNet and was developed in cooperation with both patients and healthcare professionals. Continue reading

This entry was posted in ERN, MTG1.

Master course on DSD

On the 29th and 30th of November, 2018, Karolinska Institutet and the European Society for Paediatric Urology are hosting a master course on DSD in Stockholm, Sweden.

The programme will consist of lectures and case presentations by delegates. Registration is possible via email to marie.nurmi-johannesen@sll.se

Workshop summary

WorkshopMaster course on DSD
DateNovember 29th - November 30th, 2018
LocationStockholm, Sweden
OrganisationKarolinska Institutet
WebsiteVisit workshop website