Dates: Thursday, 8 April & Friday, 9 April, 2027
Location: Amsterdam UMC, Amsterdam, the Netherlands
We are very much looking forward to gathering once again in person with all Endo-ERN members.
If there is anything specific you would like to see included in the programme, please let us know by contacting the project office. We are happy to take your suggestions into account during the planning phase.
For now, we kindly ask you to block these dates in your calendar. We hope to welcome you to Amsterdam in April!
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More details to follow – save the date.
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Register now for the next MTG7 webinar planned for Tuesday, 10 November at 16:00-17:00 (CET) . This webinar will provide an update on key aspects of care for individuals with gender dysphoria, including the short- and long-term physical outcomes of treatment and current approaches to gender-affirming hormonal treatment for transgender adults.
Short- and long-term physical outcomes of treatment
Martine Cools, UZ Gent, Belgium
Gender affirming hormonal treatment for transgender adults
Alessia Romani, University of Florence, Italy
Chaired by Endo-ERN MTG7 co-chairs Hedi Claahsen, Paediatric Chair, Radboud University Nijmegen Medical Center, the Netherlands & [...]
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Researchers, clinicians, patient organisations and other stakeholders interested in rare disease clinical trials are invited to attend ERDERA’s Clinical Trial Call 2026 (ECTC) information webinar on 6 July 2026 from 15:00–17:00 CEST.
The webinar will provide an overview of the upcoming ERDERA Clinical Trial Call 2026, which opens on 1 July 2026 and will support multinational, GCP-compliant Phase I, Phase I/II and Phase II interventional clinical trials in rare diseases.
The call aims to generate robust clinical evidence and support the development of new therapies for rare diseases, particularly where patient populations are small [...]
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Clinically Relevant Genetic Insights in Hypothalamo-Pituitary Diseases is an international 2.5-day training course taking place from 15–17 October 2026 in Amsterdam, The Netherlands. Designed for both paediatric and adult endocrinologists, the course will explore the rapidly evolving role of genetics in the diagnosis and management of hypothalamo-pituitary diseases.
Through highly interactive small-group learning, participants will engage in case-based discussions, workshops, debates, and participant case presentations led by internationally renowned experts. The programme focuses on the practical application of genetic testing in clinical care, including interpretation of gene panels and variants, integration of genetics into routine endocrine [...]
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Save the date and register now for the next MTG5 webinar on ROHHAD syndrome – endocrine challenges in diagnosis and management scheduled for Monday, 5 October 14:00-15:00 CEST.
ROHHAD syndrome (Rapid-onset Obesity with Hypothalamic dysfunction, Hypoventilation, and Autonomic Dysregulation) is an extremely rare, life-threatening disorder primarily affecting children. Starting in previously healthy children between ages 1.5 and 11, it causes rapid weight gain, severe breathing issues while sleeping or awake, and nervous system imbalances. This webinar will provide updates on this challenging condition and the current studies being conducted in the endocrine field across UK [...]
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Save the date and register now for the next MTG5 webinar An overview of genomic imprinting, mechanisms and phenotypical implications in endocrine conditions scheduled for Friday 18 September 12:00-13:00 CEST.
Speaker information will be updated in the coming weeks.
Register now and if you are unable to attend live you will receive a recording after the event.
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Registration now open: EPNS Research Meeting 16-17 October 2026, Thessaloniki, Greece
Head to Thessaloniki for the unique European Paediatric Neurology Society (EPNS) Research Meeting 2026, featuring plenary lectures from leading experts and interactive sessions, including two break-out sessions with five parallel working groups covering Autoimmune & Infectious Diseases, Developmental Neurology & Neurogenetics, Epilepsy, Fetal & Neonatal Neurology, Leukodystrophies, Movement Disorders, Neurometabolic, and Neuromuscular disorders.
Registration is now open on first-come, first-served basis to paediatric neurology researchers at all career stages—from trainees and PhD students to senior experts—this meeting offers an excellent opportunity for [...]
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ERDERA invites the ERN community to an introductory webinar on The ERDERA Diagnostic Research Workstream – An Overview, taking place on Thursday, 28 May 2026, from 13:00 to 14:00 CEST.
Presented by Holm Graessner, this opening session will explain what the ERDERA Diagnostic Research Workstream does, how it is organised, and how clinicians, researchers and expert groups can contribute. The webinar will provide an overview of the workstream’s core activities, including data sharing, systematic diagnostic reanalysis, advanced diagnostic pipelines, and innovation in genomic and multi-omics technologies.
The session is particularly relevant for ERN healthcare professionals, geneticists, clinicians, JTC [...]
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