Read the Endo-ERN January newsletter now! This month we were busy with enrolling our first patient into the CPMS, uploading the work-plan for year 2, attending many events, and so much more. Read the complete newsletter to find out. Continue reading
Capital Care for Pituitary Adenomas Leiden 2018 is organising a Multidisciplinary workshop for pituitary tumour specialists on the 7th and 8th of June, 2018. Continue reading
On the 24th of January the Endo-ERN coordinating office organised an ERN Symposium in the Leiden University Medical Center (LUMC). Continue reading
On the 22nd of January we attended a workshop on the Preparation of Final Technical and Financial Reports of the ERNs, organised by the CHAFEA Health and Food Safety Unit Team. Continue reading
On the 19th of January the Istituto Superiore di Sanità in Napels, Italy organised the third Endo-ERN meeting of the Italian HCPS. Both Endo-ERN coordinator Alberto Pereira and deputy coordinator Olaf Hiort attended.
On the 15th of January 2018, the kick-off meeting of the Rare diseases GO FAIR implementation network will be held in Leiden, the Netherlands.
FAIR data stands for Findable, Accesible, Interoperable, and Reusable. It is of great importance to ERNs that data is made available in internationally sustainable principles.
|Event||Kick-off Rare Diseases GO FAIR|
|Date||January 15th - January 15th, 2018|
|Location||Leiden, The Netherlands|
Endo-ERN has enrolled its first patient into the Clinical Patient Management System (CPMS). Continue reading
Yesterday Endo-ERN submitted the Specific Grant Application (SGA), containing the work plan of Year 2 for Endo-ERN. Continue reading
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Read the Endo-ERN Newsletter December 2017 now for an update on the CPMS & the scheduled educational webinars, a short report on the Steering Committee meeting in December, upcoming events, and much more. Continue reading