What we do

Endo-ERN activities are defined by nine work packages throughout different phases. Phase 1 entails survey, evaluation and strategic planning; phase 2 involves the stepwise execution / implementation of the planning; phase 3 wraps up the implementation and works towards producing guidelines and the establishment of a network that can be sustained beyond the five-year plan.

Endo-ERN members are involved in the following activities:  

• Virtual Consultations
• Registries 
  
• Training & Education
• Rare Disease Research 
  
• Clinical Practice Resources 
• European Patient Advocacy Group & Patient Information