Hypothalamic and Pituitary Conditions

Hypothalamic and Pituitary Conditions (MTG6)

Rare pituitary disorders are a group of various clinical syndromes with low prevalence (main groups 100-500 million, specific diseases/genetic disorders less than 1 million) requiring multidisciplinary and lifelong care because of the central endocrine function of the pituitary, its location in the vicinity of the optic system and the hypothalamus and the associated pituitary hormone disturbance limit QoL and long-term functional outcome depending on the specific underlying disease, resulting in multisystem morbidity. We have identified 3 subthematic groups within the pituitary MTG, based on different multidisciplinary team and different diagnostic and treatment approaches: pituitary adenoma, congenital hypopituitarism, acquired hypopituitarism. Within the pituitary network we aim to further characterise expertise by creating subsubnetworks focusing on specific ultrarare diseases (or diagnostics or interventions) within the subthematic groups.
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