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    • About ERN
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    • Overview
    • Adrenal (MTG1)
    • Disorders of Calcium &
      Phosphate Homeostasis (MTG2)
    • Genetic Disorders of Glucose &
      Insulin Homeostasis (MTG3)
    • Genetic Endocrine
      Tumour Syndromes (MTG4)
    • Growth &
      Genetic Obesity Syndromes (MTG5)
    • Hypothalamic and Pituitary Conditions (MTG6)
    • Sex Development &
      Maturation (MTG7)
    • Thyroid (MTG8)
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    • Introduction
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    • AMEQUIS
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  • About
    • About
      European Reference Network on Rare Endocrine Conditions mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine conditions in Europe, through facilitating knowledge sharing and facilitating related healthcare en research.
    • About ERN
    • About Endo-ERN
    • Governance
    • Reference Centres
    • ERN Information Materials
  • Specific Expertise
    • Specific Expertise
      According to usual classification of endocrine conditions, specific diagnostic and therapeutic approaches and composition of the required multidisciplenary teams, eight established Main Thematic Groups (MTGs) were defined within Endo-ERN.
    • Overview
    • Adrenal (MTG1)
    • Disorders of Calcium &
      Phosphate Homeostasis (MTG2)
    • Genetic Disorders of Glucose &
      Insulin Homeostasis (MTG3)
    • Genetic Endocrine
      Tumour Syndromes (MTG4)
    • Growth &
      Genetic Obesity Syndromes (MTG5)
    • Hypothalamic and Pituitary Conditions (MTG6)
    • Sex Development &
      Maturation (MTG7)
    • Thyroid (MTG8)
  • Patients
    • Patients
      Adequate patient representation and coverage of all expertise, and preferably also of the Work-Packages across all member states is top-priority for Endo-ERN. Patients are represented in the Steering Committee to ensure active patient involvement in any strategic decision and action.
    • Introduction
    • European Patient Advocacy Group
    • How to Become an Endo-ERN patient representative
    • Endo-ERN Patient Representatives
    • Conditions
    • Cross-border Healthcare
    • Patient information materials
  • Activities
    • Activities
      Endo-ERN activities are defined in five work packages throughout different phases.
    • Knowledge Generation
    • Research Activities
    • Clinical Activities & eHealth
    • Clinical Trials
    • Endo-ERN Studies
    • ERN Exchange Programme
    • Guidelines
    • Evaluation
    • Other Projects
  • Publications
  • Evaluation
    • Evaluation
      The objective of the European Reference Networks is to ensure accessible diagnosis and treatment for rare diseases. This care should be consistent across the EU/EEA and rare disease type.
    • Overview
    • Continuous Monitoring Programme
    • 5-Year Evaluation
    • Patient Resources
    • AMEQUIS
  • ⁄
  • Patients
  • ⁄
  • Patient information materials
  • Introduction
  • European Patient Advocacy Group
  • How to Become an Endo-ERN patient representative
  • Endo-ERN Patient Representatives
  • Conditions
  • Cross-border Healthcare
  • Patient information materials

Patient information materials

Patient Information materials

Endo-ERN is collecting patient materials on the different conditions covered by Endo-ERN in different languages.

  • MTG1 Adrenal - patient materials
  • MTG3 Genetic Disorders of Glucose & Insulin Homeostasis - patient materials
  • MTG4 Genetic Endocrine Tumour Syndromes - patient materials
  • MTG6 Hypothalamic and Pituitary Conditions - patient materials
  • MTG7 Sex Development & Maturation - patient materials

 

Endo-ERN
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Meibergdreef 9
1105 AZ  AMSTERDAM
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Endo-ERN is funded by the European Union’s Health Programme.

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