Overview of Webinars

MTGTheme / TitleDateTime CETSpeaker(s)RegisterViewCPMS
ESE Talks webinar2024-11-05
MTG7Turner syndrome and fertility options2024-09-2515:00 – 16:00 hrDr Janielle van der Velden and Hedi Claahsen
ESE Talks webinar2024-09-17
MTG4Multiple Endocrine Neoplasia Type 2: New insights from childhood to adult2024-06-1816:30 – 17:30 hrPetra Bruegmann, Antje Redlich, Frederic Castinetti and Jo Grey
MTG1Adrenocortical carcinoma – diagnosis and personalized management 20242024-04-0916:00 – 17:00 hr
MTG3The mysterious links among cilia, centrosomes and insulin resistance: What have we learned from human genetics?2024-04-0215:00 – 16:00 hr
Guide to Patient Journeys2024-03-2015:00 – 16:00 hr
The Neuropathies Rehabilitation Summer School: patient partnership in educational programmes2024-03-1218:00 – 18:45 hr
Orphan Medicines Development – ask the European regulator webinar2024-02-2916:00 – 17:30 hr
EMA/ACT Training: Transitioning trials to the CTR (CTIS) for non-commercial sponsors2024-02-0910:00 – 13:00 hr
MTG1MTG7Pregnancy management in CAH2024-02-0816:00 – 17:00 hrLuca Persani, Nicole Reisch and Manuela Brösamle
ESE Talks…Congenital hypothyroidism and related problems2024-02-0617:00 – 18:15 hr
MTG6SOD (septo-optic dysplasia) Clinical Management and Patient Needs2024-01-2516:30 – 18:00 hrEvangelia Charmandari, Nienke Biermasz, Prof Mohamad Maghnie and Mehul Dattani
MTG8The differential diagnosis of discrepant thyroid function test webinar2024-01-2315:00 – 16:00 hrLuca Persani, Irene Campi and Edward Visser
MTG1MTG7Gonadal dysfunction in males with CAH2024-01-1016:30 – 17:15 hrHedi Claahsen and Manuela Brösamle
MTG3Endo-ERN webinar HNF1B diabetes2023-12-1315:30 – 16:30 hrJarno Kettunen, Helka Parviainen, Tiinamaija Tuomi and Päivi Miettinen
The EuRR-Bone registries, why, what, and how?2023-12-1316:00 – 17:00 hr
ESE talks…Clinical Management of Androgen Insensitivity Syndrome Before and During Transition2023-11-27Luca Persani, Olaf Hiort and Martine Cools
MTG1Primary adrenal insufficiency – diagnosis, treatment and follow-up illustrated by cases2023-11-2316:00 – 17:00 hrEyestein Husebye
MTG1Non-classic CAH – an underdiagnosed condition2023-10-1916:30 – 17:30 hrHenrik Falhammar
MTG7Klinefelter syndrome – from genomics to the clinic2023-08-3116:00 – 17:00 hrClaus H. Gravholt
Getting to Know Virtual Consultations2023-07-1316:00 – 17:00 hrEmily K White
MTG8Management of thyroid nodules in children (ETA guidelines)2023-06-2916:00 – 17:30 hr
ESE Talks…Use of EuRRECa databases to enhance our understanding of XLH and parathyroid carcinoma2023-06-2717:00 – 18:00 hrCarola Zilikens, Natasha Appelman-Dijkstra, Diana-Alexandra Ertl and Francesca Marini
MTG7Puberty induction in the two sexes – a case based discussion2023-06-2016:30 – 17:30 hrMarco Bonomi, Biagio Cangiano, Dr Silvia Federici and Giovanni Goggi
Getting to Know Virtual Consultations2023-06-0116:00 – 17:00 hrEmily K White
The Impact of Solve-RD on Research & Care of Rare Disease Patients2023-04-268:30 – 12:30 hr
Designing and conducting clinical trials in rare disease-what industries expect for partnering with clinical sites2023-04-1412:30 – 13:30 hrDiego Ardigò
MTG7Genetic diagnosis of azoospermia: from chromosomes to whole exome analysis webinar2023-04-0617:00 – 18:00 hrOlaf Hiort, Luca Persani, Csilla Krausz, Giulia Rastrelli and Chris Breen
Getting to Know Rare Disease Registries2023-03-2216:00 – 17:00 hrFaisal Ahmed
5-year Evaluation Q&A Sessions2023-02-1517:00 – 18:00 hr
MTG5MTG6Craniopharyngioma and hypothalamic obesity2023-01-3116:00 – 17:30 hrH.W. Gan, Hanneke M. van Santen, Johan De Graaf   and Sebastian J.C.M.M. Neggers
A tool to help patients with rare endocrine diseases2022-12-1417:00 – 18:30 hrSusan M Webb, Matt Bolz-Johnson, Lenja Wiehe, Jette Kristensen, Anna Nordenström and Diana Vitali
MTG4MEN-1 – a joint webinar from ESE, Endo-ERN and ESPE2022-11-2917:00 – 19:00 hrGregory Kaltsas (Greece), Gerlof Valk (Netherlands) and Carla Pieterman (Netherlands)
EURORDIS webinar series on Clinical Practice Guidelines – November 14 and 242022-11-14
ERDRI.spider training (on-line)2022-11-01
MTG8For a prolonged use of antithyroid drug in children with Graves’disease2022-09-2917:00 – 18:00 hrJuliane Léger and Edward Visser
ePAG Exchange of Good Practices – VASCERN Flowchart webinar2022-09-2716:00 – 17:30 hr
MTG8The challenging diagnosis of TSH-omas and RTHbeta – a case-based discussion2022-07-0416:00 – 17:00 hrLuca Persani and Irene Campi
A joint webinar from ESE, Endo-ERN and ESPE2022-06-2816:30 – 18:00 hr
MTG5Noonan syndrome with emphasis on current guidelines regarding growth, endocrinology and growth hormone therapy2022-06-0717:00 – 18:00 hrJovanna Dahlgren and Kees Noordam
MTG5New growth treatments for Achondroplasia2022-05-1016:00 – 17:00 hrKlaus Mohnike, Jean Pierre Salles and Patricia Carl
CPMS Training workshop2022-04-0810:00 – 12:00 hr
EMA: Repurposing of authorised medicines: pilot to support not-for-profit organisations and academia2022-02-17
Webinar ETA guideline pediatric thyroid nodules and thyroid carcinoma2021-12-1519:00 – 20:30 hr
MTG880 years of radioiodine – what’s new?2021-12-0115:00 – 16:00 hrErik Verburg
MTG8Challenges in the management of non-metastatic thyroid carcinoma2021-11-2515:00 – 17:00 hrBarbara Jarzab, Jolanta Krajewska, Dagmara Rusinek, Daria Handkiewicz-Junak, Ewa Chmielik and Agnieszka Czarniecka
MTG5Growth & Genetic Obesity Syndromes – Prader Willi Syndrome (PWS) Clinical management of transition of care2021-11-1614:00 – 17:00 hrMaithe Tauber, Tony Holland , Laura de Graaff, Charlotte Höybye, Christine Poitou and Berit Otterlei
MTG7Update on the management of 46,XX Ovarian Dysgenesis and Primary Ovarian Insufficiency2021-09-0915:00 – 16:00 hrPhilippe Touraine
MTG5Overgrowth syndromes Beckwith Wiedemann syndrome and other rare conditions2021-09-0717:00 – 18:00 hrFrédéric Brioude
8th International Disorders/Differences of Sex Development Symposium2021-07-08
MTG3Update on congenital hyperinsulinism2021-07-0616:00 – 17:00 hrOliver Blankenstein, Peter Kühnen, Sebastian Kummer, Thomas Meissner and Alena Welters
EuRR-Bone What and how?”2021-06-2817:00 – 18:00 hrNatasha Appelman-Dijkstra and Ana Priego Zurita
hPSCreg2021-06-2115:00 – 16:00 hrNancy Mah
MTG5Clinical trials with new drugs in PWS2021-06-1517:00 – 18:00 hrMaithe Tauber
MTG1Clinical and genetic aspects of pheochromocytoma2021-06-1415:00 – 16:00 hrPeter Igaz
MTG3Rare diabetes caused by endoplasmic reticulum stress – clinical features and novel patients’ stem cell-based models2021-05-2616:00 – 17:00 hrMiriam Cnop
MTG6Central congenital hypothyroidism; clinical characteristics and cognitive outcome in early detected patients2021-05-1214:00 – 15:00 hrNitash Zwaveling-Soonawala, Paul van Trotsenburg, Jolanda Naafs and Anita Boelen
MTG6Pituitary Gigantism FIPA, AIP and XLAG2021-04-2216:00 – 17:00 hrAdrian F. Daly and Albert Beckers
MTG6Development and integration of VBHC in pituitary care in an Endo-ERN reference center2021-04-1917:00 – 18:00 hrNienke Biermasz and Friso de Vries
MTG5Molecular diagnostic testing of imprinting disorders and related growth disturbances2021-03-0217:00 – 18:00 hrThomas Eggermann
How to enroll a patient, start a panel and upload files to a panel2021-02-2317:00 – 17:30 hrDanielle Steenvoorden
How to invite members to your panel, schedule a video meeting and join a video meeting2021-01-2817:00 – 17:30 hrDanielle Steenvoorden
MTG2Endocrine and bone management in Duchenne muscular dystrophy2021-01-2514:30 – 15:30 hrJarod Wong and Justus Kuijer
MTG7Sex Development & Maturation2020-12-1813:00 – 15:00 hrOlaf Hiort, Luca Persani, Manuela Brösamle, Arlene Smyth, Sasha Howard, Martine Cools, Guy T’Sjoen, Anders Juul and Anna Nordenström
MTG2Hypophosphatasia – Diagnosis and Management2020-12-0818:00 – 19:30 hrFaisal Ahmed, James Irvine, Agnès Linglart and Anya Rothenbuller
How to enrol a patient, start a panel and upload files to a panel2020-12-0317:00 – 18:00 hrDanielle Steenvoorden and Isabel Moenig
MTG5Diagnosis and management of Silver–Russell Syndrome, a multidisciplinary care is necessary2020-11-2417:00 – 18:00 hrIrene Netchine
MTG3Wolfram syndrome – Diagnostics, Biomarkers, and Therapeutic Options2020-11-1115:00 – 16:00 hrFumihiko Urano
MTG3Wolfram syndrome2020-10-0715:00 – 16:00 hr
MTG5Prader-willi syndrome2020-09-2917:00 – 18:00 hrAnita Hokken
MTG3Monogenic insulin resistance – diagnosis, treatment, and insights for common disease2020-09-1615:00 – 16:00 hrRobert K. Semple
MTG3Understanding Lipodystrophy2020-07-0815:00 – 16:00 hrGiovanni Ceccarini and Rebecca Sanders
MTG5Genetic Obesity Disorders caused by Leptin-melanocortin Pathway Defects2020-07-0718:00 – 19:00 hrErica van den Akker
MTG8Update on the consensus on congenital hypothyroidism a patient centered approach2020-07-01Michel Polak
COVID-19 Endocrine conditions with increased risk – Endo-ERN2020-05-1218:00 – 19:00 hrAlberto Pereira, Eelco de Koning and Wiebke Artl
MTG1Update on congenital adrenal hyperplasia2020-03-23Nicole Reisch
MTG4Prophylactic thyroidectomy in Children with MEN22020-02-21Tom Kurzawinski
MTG7Turner Syndrome Guideline & the patient perspective2020-02-13Claus H. Gravholt and Arlene Smyth
MTG3Alström Syndrome2019-11-2515:00 – 16:00 hrPietro Maffei
MTG3Hyperinsulinism2019-07-0110:00 – 11:00 hrKlaus Mohnike
MTG2Hypoparathyroidism in adults, diagnosis and therapeutic challenges2019-02-2814:00 – 14:30 hrLars Rejnmark

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