The Journal

The Journal is a page for all member related news.  Come here  for real-time updates about ongoing member activities such as the Continuous Monitoring (CM), CPMS and other resources.  Bookmark or add to your favorites and check back soon!  

Tuesday, July 16

NEW:  Clinical practice guidelines for the care of girls and women with Turner syndrome:  Proceedings from the 2023 Aarhus International Turner Syndrome Meeting were recently published.  

Monday, July 15

Out now!  Bullet Point Newsletter from the Joint Action on Integration of ERNs into National Healthcare Systems (JARDIN).  

Wednesday, July 10

Are you engaged in delivering virtual consultations using CPMS?  There will be a new version available for Endo-ERN members later this year.  Find out more about the upcoming changes.  

Monday, July 8

Call all researchers the ERICA GA & ERN Research Conference is upcoming 11-13 December in Udine, Italy.  Check out the call for abstracts and registration information HERE.  


Thursday, July 4

There are currently 2 webinars planned after summer.  Register now!

September 24:  MTG2:  Fibrious Dysplasia with emphasis on hypophosphatemia 

September 25:  MTG7:  Turner syndrome and fertility options 


Wednesday, June 5

You are invited to participate in a two-year project to develop a new European Society of Endocrinology (ESE) position statement:  Self-management and support services for patients with Adrenal Insufficiency (AI).  Find our more information here.   


Thursday, May 30

The European Commission is hosting workshops in several countries with a focus on patients’ rights in cross-border healthcare and European Reference Networks.  The next workshop will be held Monday, 17 June in Dublin, Ireland.  You can register to attend in-person or online.  The registration deadline is June 7.  Other national workshops upcoming:  

19 September Athens

26 September Valga/Valka covering Estonia-Latvia

9 October Warsaw 

19 November Brussels covering Belgium-Netherlands

2 February, 2025 Strasbourg

TBD February 2025 Oradea covering Romania-Hungary

Contact DG Sante for more information.  

Tuesday, May 28

Would you like Endo-ERN to disseminate a survey for you?  We can do it!  Check out the info here and a list of previous surveys for info.  


Thursday, May 23

EURORDIS has created an Open Letter to the European Commission outlining crucial steps for rare disease to be taken following next month’s European Action Plan for Rare Diseases that bridges diverse policy areas and streamlines existing efforts with clear, measurable objectives.  Find the letter here and consider signing individually and/or as a representative of your instituition.  


Monday, May 13

Handbook of ENDOCRINOLOGY and METABOLISM

The first European endocrinology textbook developed by the members of Endo-ERN is now available.  For students and residents find out more including a discount code.   


Wednesday, May 1

The ERN Clinical Exchange Programme is now open for applications.  Applications will be accepted until July 1, 2024.  Find out about the criteria and consider applying now.  


Friday, April 26

The presentations from the Endo-ERN General Assembly are now available.  


Monday, March 25

The agenda for the upcoming SC/AB meeting is now available.


Monday, March 18

Our colleagues in ERN-EYE have made a fun interactive game to test and train doctors on how to deliver a rare disease diagnosis.  You may might like to share this link with the junior colleagues in your department as a learning tool.  

 

Information video for patients and healthcare professionals

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