The Journal

The Journal is a page for all member related news.  Come here  for real-time updates about ongoing member activities such as the Continuous Monitoring (CM), CPMS and other resources.  Bookmark or add to your favorites and check back soon!  

Monday, March 25

The agenda for the upcoming SC/AB meeting is now available.

Monday, March 18

Our colleagues in ERN-EYE have made a fun interactive game to test and train doctors on how to deliver a rare disease diagnosis.  You may might like to share this link with the junior colleagues in your department as a learning tool.  


Information video for patients and healthcare professionals

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