SAVE THE DATE EuRREB webinar: Rare disease research and the value of registries

Updated June 17

Our colleagues from the European Registries for Rare Endocrine and Bone Conditions (EuRREB) will host a webinar on Friday, 27 June at 1600-1700.

Topics are:

Update on the registries’ activity and latest developments – Ana Priego, EuRREB quality manager, LUMC, Leiden, the Netherlands.

Rare disease research and EuRREB – Loren van der Hoeven, PhD candidate at Amsterdam UMC, Amsterdam, the Netherlands and Savi Shishkov, adult endocrinologist at UMHAT “St. Marina”, Varna, Bulgaria.