Endo-ERN symposium: Growth & Genetic Obesity Syndromes – Prader Willi Syndrome (PWS) Clinical management of transition of care

On Tuesday November 16th at 14:00 – 17:00 CET an Endo-ERN symposium with multiple speakers within the main thematic group of Growth & Genetic Obesity Syndromes is organised.

Program:

Prader Willi Syndrome (PWS) Clinical management of transition of care

2:00 – 2:30 Introduction – PWS as a model of hypothalamic obesity (Maithé Tauber- FR)

2:30 – 3:00 PWS and transition of care – focus on psychology (Tony Holland – UK)

3:00 – 3:45 PWS and transition of care – endocrine care of the young adults
Adrenal insufficiency and hypogonadism (Laura De Graaff – NL)
Growth hormone treatment (Charlotte Højbye – SE)

3:45 – 4:00 Break
“Learning from People with Prader-Willi Syndrome” a video from International PWS Organisation

4:00 – 4:20 Coordination of transition and management of transitional care for patients with rare endocrine disorders (Christine Poitou + and Sandrine Bottius)

4:20 – 4:50 Patient’s view on PWS and transition of care
The parent’s view “Thank you for listening” (Berit Otterlei – NO)
The patient’s view (pre-recorded – 27 years with PWS)

4:50 – 5:00 Concluding remarks (Christine Poitou and Maithé Tauber)