Speakers: Matt Bolz-Johnson, Healthcare Advisor, EURORDIS and Michelle Battaye, ERN Manager, ERN eUROGEN
Panelists: Dalia Aminoff, AIMAR ODV – ETS, Patient’s and parent’s organization for anorectal malformation and associated defects; Kate Tyler, Esophageal ATresia Global Support Groups; Nicole Schwarzer, SoMAeV – German organization for those born with ARM or Hirschsprung’s Disease; Mary Kearney, Friedreich’s Ataxia Research Alliance
When: 20 March 2024 at 15.00-16.00 CET
Webinar summary
| Webinar | Guide to Patient Journeys |
| Date | March 20th, 2024 |
| Time | 15:00 – 16:00 hr |
| Organisation | EURORDIS |
| Registration | Registration is closed |
