REGISTER: Guide to Patient Journeys

EURORDIS Patient Journey

Speakers: Matt Bolz-Johnson, Healthcare Advisor, EURORDIS and Michelle Battaye, ERN Manager, ERN eUROGEN

Panelists: Dalia Aminoff, AIMAR ODV – ETS, Patient’s and parent’s organization for anorectal malformation and associated defects; Kate Tyler, Esophageal ATresia Global Support Groups; Nicole Schwarzer, SoMAeV – German organization for those born with ARM or Hirschsprung’s Disease; Mary Kearney, Friedreich’s Ataxia Research Alliance

When: 20 March 2024 at 15.00-16.00 CET

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Webinar summary

WebinarGuide to Patient Journeys
DateMarch 20th, 2024
Time15:00 – 16:00 hr
RegistrationRegistration is closed