ESE Endo for study

Attention Endo-ERN representatives! You are invited to participate in this important two-year project to develop a new ESE position statement: Self-management and support services for patients with Adrenal Insufficiency (AI).

This two-year project aims to:

  • Evaluate factors that influence self-managment for patients with AI (international cross-sectional survey adapted and translated in several languages)
  • Explore current patient educaiton approaches and support services across Europe
  • Develop an evidence-based Euorpean Position Statement using Delphi research methodology

You are invited to participate as a:

  • Principle Investigator to recruit patients with AI from your centre or country
  • Patient advocacy group representives to disseminate the survey to your members
  • Member of the Expert Panel in the Delphi Study to develop the ESE Position Statement

Download the study protocol and FAQ for more information. Please contact Dr Sofia Llahana for more information or any further questions.

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