Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
The Clinical Patient Management System (CPMS) is a secure and fully GDPR compliant IT platform aiming to facilitate the cross-border discussion of rare clinical cases.
In an effort to enhance both functionality and user experience, the current CPMS will be replaced by a new version of the system, the CPMS 2.0. The system migration is planned to be completed by the end of the year. CPMS 2.0 is now hosted on a purpose-built platform developed by DG Sante, ERNs, and IBM, ensuring better alignment with the specific needs of the users.
The main improvements of the new system include:
Subscribe to our email newsletter for useful information and valuable resources.