Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
In total, the Performance System has 62 activities that you are graded on as an Endo-ERN member.
We then generate a score and an annual report per member HCP that includes general feedback and advice. This feedback in turn should promote the values and goals of the network and how members are contributing to them.
Each of the activities has a possible score and is categorised as mandatory, expected or bonus.
Download the Scored Activities for 2024 and the breakdown of the Scoring Weighting.
Point to note: The scores generated by the Endo-ERN HCP Performance System are intended to measure the contribution and participation in activities as a member of our network. These scores do not assess or reflect in any way adherence to standards of clinical care (nationally or locally).
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