Past Member Surveys

If you would If you are interested in receiving the data, if available, or be in touch with the investigator contact the Endo-ERN project office.  

Previously distributed surveys

2024

SURVEY on diagnosis and management of complete androgen insensitivity syndrome (CAIS)

Delphi study on differentiated thyroid carcinoma 

2018-2023

Carney Complex: Survey

Current practice in transition of patients with pituitary disease

Endo-ERN – European survey about patients’ unmet needs in medical research

Endo-ERN WP3 survey on clinical trial units

Endo-ERN Quality of care & patient view (patient survey)

Outcomes of pituitary surgery:  collaborative paper and survey

Survey cardiovascular – metabolic risk in Cushing’s syndrome

Survey Cushing and Thrombosis 

Questionnaire unmet need acquired hypothalamic dysfunction

Consequences of hypothalmic dysfunction or problems in the pituitary/hypothalamus area after treatment for a tumour in the hypothalmic/pituitary region

Survey exploring testosterone methodology in clinical units and laboratories throughout Europe

High-grade aneuploidies (HGAs) of sex chromosomes with male phenotype (eg 48, XXYY; 48, XXXY; 49 XXXXY syndromes