The key findings from the latest EURORDIS Rare Barometer survey revealing widespread barriers faced by the 30 million people living with rare diseases in Europe in their daily lives.

There were several key insights related to rare endocrine conditions:

• 8/10 people with rare endocrine diseases live with disabilities
• 62% had difficulties with at least 2 activities – seeing, hearing, walking/climbing stairs, remember/concentrating, selfcare, communication
• 36% found it difficult or very difficult to obtain publicly funded support
• 48% experienced discrimination related to the rare disease or disability
• 23% of people with rare endocrine diseases are unemployed

Download key findings of the Rare Barometer survey – and the specific rare endocrine disease findings.