ERN Exchange Programme 2021-2022

ERN logo_Exchange Programme 2021-2022

The Exchange Programme is designed to strengthen the clinical capacities and organisation of the Network, which is in line with the mission of Endo-ERN to reduce present inequalities in rare disease care.

The ERN Exchange Programme 2021-2022 is closed effective January 31, 2023. An overview of past exchanges is provided below. Subscribe to our newsletter to be kept up-to-date about any new exchange opportunities. Or you can register your interest via our contact form.

Newsletter ERN Exchange programme (May 2022) 

Newsletter ERN Exchange programme (July 2021) 

Endo-ERN Exchanges

NameInstituteHosting InstituteExchange Information
Savi ShishkovUMHAT “Sveta Marina” (Varna)Leiden University Medical CenterPituitary Center of Excellence: Insight in shared decision making, treatment, and outcome evaluation
From 2021-10-04 to 2021-10-29 over 20 working days.
Anna StrandqvistKarolinska University HospitalErasmus MC: University Medical Center RotterdamClinic work for psychosocial support in DSD patient groups
From 2021-10-19 to 2021-10-23 over 5 working days.
Marianne BeckerCentre Hospitalier de LuxembourgUniversity of Colognepatient pathyway for pediatric patients suffering from osteoporosis and osteogenesis imperfecta, mutlidisciplinary approach and the organisation of transition to adult care for these patients
From 2022-07-27 to 2022-07-28 over 1 working days.
Sara de VincentisAOU di ModenaOslo University Hospital HF1.Outcome measurements and aligning in registries / further professionalization of the MDT’s and its integration in specific patient care pathways, with a special interest in calcium metabolic disorders
From 2022-09-12 to 2022-10-23 over 30 working days.
Arianne DessensErasmus MC: University Medical Center RotterdamKarolinska University HospitalDevelopment and implementation of clinical psychological support in DSD patient groups
From 2022-09-20 to 2022-09-26 over 5 working days.
Nikolinka YordanovaUMHAT “Sveta Marina” (Varna)Erasmus MC: University Medical Center RotterdamContemporary care  for pediatric patients and for transition process from experts in the field of PWS and short SGA children
From 2022-09-26 to 2022-10-21 over 20 working days.
Julie VandeVeldeGhent University HospitalUniversitätsklinikum Schleswig-HolsteinHow to perform the apolipoprotein (APOD) in vitro assay
From 2022-11-01 to 2022-11-25 over 20 working days.
Iiro KostiainenHUS Helsinki University Hospital, Hospital District of Helsinki and Uusimaa (EndoERN_FIN)University Medical Center Utrecht – Dept of Endocrine OncologyMEN1 manifestations in children and adolescents reaching transitional age
From 2022-11-14 to 2022-11-25 over 10 working days.
Sandra WessmannKarolinska University HospitalGhent University HospitalExamination and diagnostic work on surgically removed gonads from patients with DSD
From 2022-12-05 to 2022-12-09 over 5 working days.
Zhaneta YanevaUMHAT “Sveta Marina” (Varna)Ludwig-Maximilian-University MunichEstablishment of a center specific transition strategy that will prevent disruption of care for patients with rare endocrine diseases
From 2023-01-03 to 2023-01-31 over 20 working days.
Eeva RyhanenHUS Helsinki University Hospital, Hospital District of Helsinki and Uusimaa (EndoERN_FIN)Leiden University Medical CenterClinical management of patients with calcium-phosphate, metabolic and rare bone diseases
From 2023-01-16 to 2023-01-20 over 5 working days.
Dirk-Jan StenversAmsterdam UMC, location AMCUniversity of BaselKnowledge exchange about development of endocrine innovations guided by value based healthcare
From 2023-01-24 to 2023-01-27 over 4 working days.
Endo-ERN Patient Advocacy Group Amsterdam UMC, location AMCNew insights into clinical development of endocrine disorders, update on Endo-ERN activities involving ePAGs, improving care from the patients perspective, update on data registries, alignment with EURORDIS
From 2023-01-29 to 2023-01-31 over 3 working days.
Information video for patients and healthcare professionals

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