The Exchange Programme is designed to strengthen the clinical capacities and organisation of the Network, which is in line with the mission of Endo-ERN to reduce present inequalities in rare disease care.
The ERN Exchange Programme 2021-2022 is closed effective January 31, 2023. An overview of past exchanges is provided below. Subscribe to our newsletter to be kept up-to-date about any new exchange opportunities. Or you can register your interest via our contact form.
|Name||Institute||Hosting Institute||Exchange Information|
|Savi Shishkov||UMHAT “Sveta Marina” (Varna)||Leiden University Medical Center||Pituitary Center of Excellence: Insight in shared decision making, treatment, and outcome evaluation|
From 2021-10-04 to 2021-10-29 over 20 working days.
|Anna Strandqvist||Karolinska University Hospital||Erasmus MC: University Medical Center Rotterdam||Clinic work for psychosocial support in DSD patient groups|
From 2021-10-19 to 2021-10-23 over 5 working days.
|Marianne Becker||Centre Hospitalier de Luxembourg||University of Cologne||patient pathyway for pediatric patients suffering from osteoporosis and osteogenesis imperfecta, mutlidisciplinary approach and the organisation of transition to adult care for these patients|
From 2022-07-27 to 2022-07-28 over 1 working days.
|Sara de Vincentis||AOU di Modena||Oslo University Hospital HF1.||Outcome measurements and aligning in registries / further professionalization of the MDT’s and its integration in specific patient care pathways, with a special interest in calcium metabolic disorders|
From 2022-09-12 to 2022-10-23 over 30 working days.
|Arianne Dessens||Erasmus MC: University Medical Center Rotterdam||Karolinska University Hospital||Development and implementation of clinical psychological support in DSD patient groups|
From 2022-09-20 to 2022-09-26 over 5 working days.
|Nikolinka Yordanova||UMHAT “Sveta Marina” (Varna)||Erasmus MC: University Medical Center Rotterdam||Contemporary care for pediatric patients and for transition process from experts in the field of PWS and short SGA children|
From 2022-09-26 to 2022-10-21 over 20 working days.
|Julie VandeVelde||Ghent University Hospital||Universitätsklinikum Schleswig-Holstein||How to perform the apolipoprotein (APOD) in vitro assay|
From 2022-11-01 to 2022-11-25 over 20 working days.
|Iiro Kostiainen||HUS Helsinki University Hospital, Hospital District of Helsinki and Uusimaa (EndoERN_FIN)||University Medical Center Utrecht – Dept of Endocrine Oncology||MEN1 manifestations in children and adolescents reaching transitional age|
From 2022-11-14 to 2022-11-25 over 10 working days.
|Sandra Wessmann||Karolinska University Hospital||Ghent University Hospital||Examination and diagnostic work on surgically removed gonads from patients with DSD|
From 2022-12-05 to 2022-12-09 over 5 working days.
|Zhaneta Yaneva||UMHAT “Sveta Marina” (Varna)||Ludwig-Maximilian-University Munich||Establishment of a center specific transition strategy that will prevent disruption of care for patients with rare endocrine diseases|
From 2023-01-03 to 2023-01-31 over 20 working days.
|Eeva Ryhanen||HUS Helsinki University Hospital, Hospital District of Helsinki and Uusimaa (EndoERN_FIN)||Leiden University Medical Center||Clinical management of patients with calcium-phosphate, metabolic and rare bone diseases|
From 2023-01-16 to 2023-01-20 over 5 working days.
|Dirk-Jan Stenvers||Amsterdam UMC, location AMC||University of Basel||Knowledge exchange about development of endocrine innovations guided by value based healthcare|
From 2023-01-24 to 2023-01-27 over 4 working days.
|Endo-ERN Patient Advocacy Group||Amsterdam UMC, location AMC||New insights into clinical development of endocrine disorders, update on Endo-ERN activities involving ePAGs, improving care from the patients perspective, update on data registries, alignment with EURORDIS|
From 2023-01-29 to 2023-01-31 over 3 working days.