ERN Exchange Programme 2021-2022
The Exchange Programme is designed to strengthen the clinical capacities and organisation of the Network, which is in line with the mission of Endo-ERN to reduce present inequalities in rare disease care.
The ERN Exchange Programme 2021-2022 is closed effective January 31, 2023. An overview of past exchanges is provided below. Subscribe to our newsletter to be kept up-to-date about any new exchange opportunities. Or you can register your interest via our contact form.
Newsletter ERN Exchange programme (May 2022)
Newsletter ERN Exchange programme (July 2021)
Endo-ERN Exchanges
| Name | Institute | Hosting Institute | Exchange Information |
|---|---|---|---|
| Savi Shishkov | UMHAT “Sveta Marina” (Varna) | Leiden University Medical Center | Pituitary Center of Excellence: Insight in shared decision making, treatment, and outcome evaluation From 2021-10-04 to 2021-10-29 over 20 working days. |
| Anna Strandqvist | Karolinska University Hospital | Erasmus MC: University Medical Center Rotterdam | Clinic work for psychosocial support in DSD patient groups From 2021-10-19 to 2021-10-23 over 5 working days. |
| Marianne Becker | Centre Hospitalier de Luxembourg | University of Cologne | patient pathyway for pediatric patients suffering from osteoporosis and osteogenesis imperfecta, mutlidisciplinary approach and the organisation of transition to adult care for these patients From 2022-07-27 to 2022-07-28 over 1 working days. |
| Sara de Vincentis | AOU di Modena | Oslo University Hospital HF1. | Outcome measurements and aligning in registries / further professionalization of the MDT's and its integration in specific patient care pathways, with a special interest in calcium metabolic disorders From 2022-09-12 to 2022-10-23 over 30 working days. |
| Arianne Dessens | Erasmus MC: University Medical Center Rotterdam | Karolinska University Hospital | Development and implementation of clinical psychological support in DSD patient groups From 2022-09-20 to 2022-09-26 over 5 working days. |
| Nikolinka Yordanova | UMHAT “Sveta Marina” (Varna) | Erasmus MC: University Medical Center Rotterdam | Contemporary care for pediatric patients and for transition process from experts in the field of PWS and short SGA children From 2022-09-26 to 2022-10-21 over 20 working days. |
| Julie VandeVelde | Ghent University Hospital | Universitätsklinikum Schleswig-Holstein | How to perform the apolipoprotein (APOD) in vitro assay From 2022-11-01 to 2022-11-25 over 20 working days. |
| Iiro Kostiainen | HUS Helsinki University Hospital, Hospital District of Helsinki and Uusimaa (EndoERN_FIN) | University Medical Center Utrecht – Dept of Endocrine Oncology | MEN1 manifestations in children and adolescents reaching transitional age From 2022-11-14 to 2022-11-25 over 10 working days. |
| Sandra Wessmann | Karolinska University Hospital | Ghent University Hospital | Examination and diagnostic work on surgically removed gonads from patients with DSD From 2022-12-05 to 2022-12-09 over 5 working days. |
| Zhaneta Yaneva | UMHAT “Sveta Marina” (Varna) | Ludwig-Maximilian-University Munich | Establishment of a center specific transition strategy that will prevent disruption of care for patients with rare endocrine diseases From 2023-01-03 to 2023-01-31 over 20 working days. |
| Eeva Ryhanen | HUS Helsinki University Hospital, Hospital District of Helsinki and Uusimaa (EndoERN_FIN) | Leiden University Medical Center | Clinical management of patients with calcium-phosphate, metabolic and rare bone diseases From 2023-01-16 to 2023-01-20 over 5 working days. |
| Dirk-Jan Stenvers | Amsterdam UMC, location AMC | University of Basel | Knowledge exchange about development of endocrine innovations guided by value based healthcare From 2023-01-24 to 2023-01-27 over 4 working days. |
| Endo-ERN Patient Advocacy Group | Amsterdam UMC, location AMC | New insights into clinical development of endocrine disorders, update on Endo-ERN activities involving ePAGs, improving care from the patients perspective, update on data registries, alignment with EURORDIS From 2023-01-29 to 2023-01-31 over 3 working days. |
Last update: January 31, 2023 on 11:34