Read the Endo-ERN May newsletter now! In this edition we announce our presence at the European Society for Paediatric Endocrinology meeting, you can read reports on multiple meetings such as the CAPITAL meeting, and the CPMS WebEx Webinars hosted by our operational helpdesk! Continue reading
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Newsletter April 2018
Read the Endo-ERN April newsletter now! This edition contains the date for the Endo-ERN General Assembly 2019, more information about our stand at ECE2018, a video on CPMS, and much more! Continue reading
Video: Getting started with CPMS
The European Commission has released a video on how to get started with the Clinical Patient Management System (CPMS). Continue reading
Press release: Rare Diseases day and 1 year anniversary of ERNs
The European Commission has released a press release looking back on Rare Diseases day and celebrating the 1-year anniversary of ERNs Continue reading
Newsletter February 2018
Read the Endo-ERN February newsletter now! This past month we held our second General Assembly, the ERN coordinators wrote a position statement on the state of the UK in ERNs, and we recieved information on a new audit coming from the European Commission. Read the complete newsletter to find out more. Continue reading
General Assembly 2018
On the 22nd of February, 2018, the second Endo-ERN General Assembly took place in Lübeck, Germany. Little under one hundred participants gathered in Lübeck for the General Assembly on the 22nd of February. Representatives of the Endo-ERN member Reference Centers, Patient Representatives, National Coordinators, representatives of ESE and ESPE, and other specifically interested persons attended. Continue reading
Position statement on the UK and ERNs
The Network Coordinators of the 24 European Reference Networks have written a position statement on the future involvement of the United Kingdom within ERNs. In this paper the ERN coordinators highlight the importance of the UK’s continuous involvement in ERNs. Continue reading
CPMS Webinar Schedule March 2018
The CPMS webinar schedule for March 2018. We encourage all Endo-ERN members to participate.
CEF Telecom Application recommended for funding
Our application for the 2017 CEF Telecom Call – eHealth (CEF-TC-2017-2) has recently been recommended for funding, along with the other ERNs! Continue reading
Newsletter January 2018
Read the Endo-ERN January newsletter now! This month we were busy with enrolling our first patient into the CPMS, uploading the work-plan for year 2, attending many events, and so much more. Read the complete newsletter to find out. Continue reading