The Pillar 2 of the EJP RD has organized its first Annual Retreat which took place at the Istituto Superiore de Sanità (ISS) in Rome (Italy) from 22nd to 24th of May 2019.
EJP RD Pillar 2 annual retreat
EU
European Patients’ Academy course succeeded
Between September 2017 and November 2018 Endo-ERN ePAG, Johan de Graaf, succeeded in completing The European Patients’ Academy (EUPATI) course together with approximately 50 European colleagues.
December Newsletter
Read the December edition of the Endo-ERN newsletter now! Meet our new CPMS Operational helpdesk and read about the many upcoming events.
4th ERN Conference Report
The European Commission has published the full report on the 4th ERN conference, held in Brussels, Belgium, on the 21st and 22nd of November, 2018.
November Newsletter
Read the November edition of the Endo-ERN newsletter now! We report on the 4th ERN conference, update on the Clinical Patient Management System, and show a new video made by the EU commission on the functioning of the ERNs!
CPMS workshop for ERN experts
On December 6th we were at the CPMS workshop for ERN experts in Brussels, Belgium. The European Commission hosted this workshop to inform the employees of the operational help desks of the different ERNs of the functions of the CPMS and the best way to go about solving problems that might come up.
Animation Video ERNs
The EU released a new animation video on ERNs
Endo-ERN was present at the 4th ERN Conference
Endo-ERN was present at the 4th ERN Conference on 21 and 22 November in Brussels, Belgium! We were present with ten delegates from five different countries. Both adult and paediatric endocrine experts, as well as patient representatives, attended the event. The lively conference featured two full days of presentations and debates, driven by plenary sessions and eight parallel workshops.
4th Conference on European Reference Networks
On November 21 and 22 the 4th Conference on European Reference Networks will take place in Brussels, Belgium. 10-12 participants per network are invited to attend and Endo-ERN will be present with adult and paediatric endocrinologists, as well as patient representatives.
The current landscape of European registries for rare endocrine conditions
On behalf of Endo-ERN the publication on ‘The current landscape of European registries for rare endocrine conditions’ was recently posted in the European Journal of Endocrinology. The objective was to identify international registries led from Europe for rare endocrine conditions and to understand the extent of engagement with these registries within Endo-ERN.