The EU public consultation survey on transformation health and care in the digital single market is open until the 12th of October 2017. The purpose of this consultation is to define the need and scope of policy measures that will promote digital innovation in improving people’s health, and address systemic challenges to health and care systems.
The consultation collects views on:
- Cross-border access to and management of personal health data;
- A joint European exploitation of resources (digital infrastructure, data capacity), to accelerate research and to advance prevention, treatment and personalised medicine;
- Measures for widespread uptake of digital innovation, supporting citizen feedback and interaction between patients and health care providers.
Digital data sharing is of vital importance to all cross-border healthcare initiatives, such as Endo-ERN.
After a successful launch of the European Reference Networks earlier this year, the 24 established networks are now developing their joint activities on rare and complex diseases. The added value for patients and their families will become visible in the coming months.
To illustrate the potential of the ERNs the European Commission has produced four video reportages, with real-life case studies: of an Italian patient with bone disorders, a Dutch heart patient, a Spanish girl who underwent a transplantation and a French representative of kidney patients. Telling their personal stories, we can show different aspects of the ERNs. A fifth, longer video reportage, brings the full story of the European Reference Networks, with the views of doctors, patients and European Commissioner Vytenis Andriukaitis.
Watch the videos
The European Commission (DG Santé) has adopted on January 26th the Work Programme 2017 under the 3rd Health Programme. This WP includes funding for supporting European Reference Networks (ERNs) with a total budget of 4.600.000 Euros (maximum 200.000 euros per ERN for coordination, management and non-clinical activities, through a Specific Grant Agreement for 2018, under a Framework Partnership Agreement signed with ERNs).
The European Commission has published a Call for proposals for Projects on Rare Disease Registries for approved ERNs on December, 21st.
To increase knowledge on rare diseases and develop clinical research
Only approved ERNs are eligible to be co-funded. Are eligible applicant organisations which are members of official ERNs. The applicants (coordinator of the proposal and co-applicants) must be legally established organisations, public authorities, public sector bodies, in particular research and health institutions, universities and higher education establishments. Continue reading