On Monday November 20th, 2017 the first version of the Clinical Patient Management System (CPMS) went live. Continue reading
On November 4th, 2017, EU commissioner Dr. Vitenyis Andriukatis was in Milan to attend the G7 health forum and led a discussion on the future of health, big data, articial intelligence, and potential benefits to patients. Continue reading
Read the Endo-ERN Newsletter October 2017 now for information on events, meetings, and much more. Continue reading
On the 9th of October, 2017, Endo-ERN held its 3rd Steering Committee & Advisory Board meeting. This meeting took place in the LUMC, Leiden, The Netherlands. Most Main Thematic Group (MTG) chairs and Work Package (WP) chairs, all ePAGs, the national coordinator of France and The Netherlands, and the ESPE representative attended. Continue reading
RD-Action published a document with Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks in order to collect data in a standardised manner, which will allow it to become syntactically and semantically interoperable. Continue reading
The Endo-ERN newsletter covering the activities of September 2017 is now available! Continue reading
The EU public consultation survey on transformation health and care in the digital single market is open until the 12th of October 2017. The purpose of this consultation is to define the need and scope of policy measures that will promote digital innovation in improving people’s health, and address systemic challenges to health and care systems.
This week the proposal for the European Registries for Rare Endocrine Conditions (EuRRECa) was approved by the European Commission. Continue reading
On the 21st of September Endo-ERN applied for the 2017 CEF Telecom Call – eHealth (CEF-TC-2017-2). Continue reading
The Endo-ERN August 2017 newsletter covering the activities of Endo-ERN for the past months is now available!
After only 5 months of being operational the European Reference Network on rare Endocrine conditions (Endo-ERN) has made a lot of progress. These months have been directed at deciding a specific strategy for active recruitment of engaged members. This was initiated at the first General Assembly in March 2017 by the sign up lists of interested members in work packages and this has continued since then. The Main Thematic Group (MTG) chairs and the Work Package (WP) chairs have steered the identification of leads to complete the first year deliverables.
Click on the link below to read more!