The Pillar 2 of the EJP RD has organized its first Annual Retreat which took place at the Istituto Superiore de Sanità (ISS) in Rome (Italy) from 22nd to 24th of May 2019. Continue reading
EJP RD Pillar 2 annual retreat
ERN
Endo-ERN at ECE2019
Endo-ERN will be present at The European Congress of Endocrinology (ECE) 2019. Endo-ERN will host a Lunch Hub session: “ESE and Endo-ERN bridging education and virtual patient consultation for rare endocrine conditions throughout Europe” and will be present at an exhibition stand together with EuRRECa. Continue reading
February-March Newsletter
Read the February-March edition of the Endo-ERN newsletter now! It features a report on our third annual General Assembly, the first EndoRARE webinar, past meetings, and upcoming meetings! Continue reading
First EndoRARE Webinar: HYPOPARATHYROIDISM in adults
On the 28th of February Lars Rejnmark presented the first EndoRARE Webinar: HYPOPARATHYROIDISM in adults, diagnosis and therapeutic challenges. Continue reading
Meeting of the Working group on Knowledge Generation: Education & Training
On the 18th of February, 2019, the first face to face meeting of the Working group on Knowledge Generation: Education & Training took place in Brussels, Belgium. Continue reading
MTG6: Pituitary meeting
On the 18th of February, 2019, a small Pituitary group meeting was held in Leiden, The Netherlands. Continue reading
January Newsletter
Read the January edition of the Endo-ERN newsletter now! We announce our presence at ECE2019, report on multiple meetings such as an ePAG meeting and an MTG8: Thyroid meeting, and relay new information about affiliated partners from the EU Commission. Continue reading
ePAG meeting Leiden
From 1-3 February, 2019 our Endo-ERN ePAGs met in Leiden, The Netherlands to discuss the patient involvement and plans in the Endo-ERN activities. Eight (of 14) ePAGs were present and one joined remotely. Continue reading
Main Thematic Group 8: Thyroid meeting
Members of the Main Thematic Group (MTG) 8: Thyroid met in Paris, at Necker Enfants Malades University Hospital, on the 23rd of January 2019 to discuss the ongoing work and progress of the MTG and it’s subgroups. Chair of MTG8, Michel Polak, wrote a short report about the meeting. Continue reading
Rare Disease Symposium Leiden
On the 30th of January the second ERN Symposium took place in the Leiden University Medical Center (LUMC) in Leiden, The Netherlands. Continue reading