Read the January edition of the Endo-ERN newsletter now! We announce our presence at ECE2019, report on multiple meetings such as an ePAG meeting and an MTG8: Thyroid meeting, and relay new information about affiliated partners from the EU Commission. Continue reading
General
ePAG meeting Leiden
From 1-3 February, 2019 our Endo-ERN ePAGs met in Leiden, The Netherlands to discuss the patient involvement and plans in the Endo-ERN activities. Eight (of 14) ePAGs were present and one joined remotely. Continue reading
Main Thematic Group 8: Thyroid meeting
Members of the Main Thematic Group (MTG) 8: Thyroid met in Paris, at Necker Enfants Malades University Hospital, on the 23rd of January 2019 to discuss the ongoing work and progress of the MTG and it’s subgroups. Chair of MTG8, Michel Polak, wrote a short report about the meeting. Continue reading
Rare Disease Symposium Leiden
On the 30th of January the second ERN Symposium took place in the Leiden University Medical Center (LUMC) in Leiden, The Netherlands. Continue reading
Nienke Biermasz appointed as professor of Endocrinology
Per February 1st 2018, our adult chair of the Main Thematic Group of Pituitary, Nienke Biermasz, was appointed as professor of Medicine at the LUMC/Leyden University. This Friday the 18th of January, 2019 the official ceremony will take place where she will officially accept her new position, by giving her inaugural lecture in Leiden (Academy building Leiden University). Continue reading
European Patients’ Academy course succeeded
Between September 2017 and November 2018 Endo-ERN ePAG, Johan de Graaf, succeeded in completing The European Patients’ Academy (EUPATI) course together with approximately 50 European colleagues. Continue reading
December Newsletter
Read the December edition of the Endo-ERN newsletter now! Meet our new CPMS Operational helpdesk and read about the many upcoming events. Continue reading
4th ERN Conference Report
The European Commission has published the full report on the 4th ERN conference, held in Brussels, Belgium, on the 21st and 22nd of November, 2018. Continue reading
November Newsletter
Read the November edition of the Endo-ERN newsletter now! We report on the 4th ERN conference, update on the Clinical Patient Management System, and show a new video made by the EU commission on the functioning of the ERNs! Continue reading
CPMS workshop for ERN experts
On December 6th we were at the CPMS workshop for ERN experts in Brussels, Belgium. The European Commission hosted this workshop to inform the employees of the operational help desks of the different ERNs of the functions of the CPMS and the best way to go about solving problems that might come up. Continue reading