May newsletter

Read the May edition of the Endo-ERN newsletter now! We posted our pictures from ECE, talk about meetings, including the first patient meeting for Eastern European countries, and much more! Continue reading

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Rare 2030 is a foresight study that gathers the input of a large group of patients, practitioners and key opinion leaders to propose policy recommendations that will lead us to a better future for people living with a rare disease in Europe. Continue reading

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Endo-ERN at ECE2019

Endo-ERN will be present at The European Congress of Endocrinology (ECE) 2019. Endo-ERN will host a Lunch Hub session: “ESE and Endo-ERN bridging education and virtual patient consultation for rare endocrine conditions throughout Europe” and will be present at an exhibition stand together with EuRRECa. Continue reading

General Assembly 2019 report

On the 12th of March, 2019, the 3rd Endo-ERN General Assembly took place in Budapest, Hungary. More than 100 members, including member reference centres, patient representatives, national coordinators, representatives of ESPE and ESE, and affiliated partners, participated in the meeting that lasted from 10:45 to 16:30. Continue reading

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