The European Commission has published the full report on the 4th ERN conference, held in Brussels, Belgium, on the 21st and 22nd of November, 2018.
Health professionals, researchers, patient organisations and policymakers gathered in Brussels on 21 & 22 November for the 4th European Reference Networks Conference. The well-attended and lively event featured two full days of presentations and debate, driven by plenary sessions and eight parallel workshops.
The conference focused on the need to consolidate the networks and examined some of the challenges that lie ahead. It touched upon several important topics such as the integration of ERNs into national health systems, the potential of ERNs in developing clinical guidelines for rare diseases, and the Clinical Patient Management System. Several sessions addressed the long-term sustainability of the ERN.
