This week the proposal for the European Registries for Rare Endocrine Conditions (EuRRECa) was approved by the European Commission. Continue reading
European Registries for Rare Endocrine Conditions
EU
CEF Telecom Application Submitted
On the 21st of September Endo-ERN applied for the 2017 CEF Telecom Call – eHealth (CEF-TC-2017-2). Continue reading
Video reportages European Reference Networks
After a successful launch of the European Reference Networks earlier this year, the 24 established networks are now developing their joint activities on rare and complex diseases. The added value for patients and their families will become visible in the coming months.
To illustrate the potential of the ERNs the European Commission has produced four video reportages, with real-life case studies: of an Italian patient with bone disorders, a Dutch heart patient, a Spanish girl who underwent a transplantation and a French representative of kidney patients. Telling their personal stories, we can show different aspects of the ERNs. A fifth, longer video reportage, brings the full story of the European Reference Networks, with the views of doctors, patients and European Commissioner Vytenis Andriukaitis.
3rd Health Programme WP 2017
The European Commission (DG Santé) has adopted on January 26th the Work Programme 2017 under the 3rd Health Programme. This WP includes funding for supporting European Reference Networks (ERNs) with a total budget of 4.600.000 Euros (maximum 200.000 euros per ERN for coordination, management and non-clinical activities, through a Specific Grant Agreement for 2018, under a Framework Partnership Agreement signed with ERNs).
EU Call for Rare Disease Registries
The European Commission has published a Call for proposals for Projects on Rare Disease Registries for approved ERNs on December, 21st.
Aim
To increase knowledge on rare diseases and develop clinical research
Eligibility
Only approved ERNs are eligible to be co-funded. Are eligible applicant organisations which are members of official ERNs. The applicants (coordinator of the proposal and co-applicants) must be legally established organisations, public authorities, public sector bodies, in particular research and health institutions, universities and higher education establishments. Continue reading