Endo-ERN was present at the 4th ERN Conference on 21 and 22 November in Brussels, Belgium! We were present with ten delegates from five different countries. Both adult and paediatric endocrine experts, as well as patient representatives, attended the event. The lively conference featured two full days of presentations and debates, driven by plenary sessions and eight parallel workshops.
On November 21 and 22 the 4th Conference on European Reference Networks will take place in Brussels, Belgium. 10-12 participants per network are invited to attend and Endo-ERN will be present with adult and paediatric endocrinologists, as well as patient representatives.
On behalf of Endo-ERN the publication on ‘The current landscape of European registries for rare endocrine conditions’ was recently posted in the European Journal of Endocrinology. The objective was to identify international registries led from Europe for rare endocrine conditions and to understand the extent of engagement with these registries within Endo-ERN.
Read the October edition of the Endo-ERN newsletter now! We announce our LinkedIn page, talk about our role in the EU ERN coordinators working group, and our translated flyers!
On November 29th, 2018, the EU Health summit will be held in Brussels, Belgium.
Over the past three years a quality of care standard for adrenal disorders has been developed and was recently listed in the Register of the Dutch National Health Care Institute in September 2018. The standard was initiated by the consortium AdrenalNet and was developed in cooperation with both patients and healthcare professionals.
On the 29th and 30th of November, 2018, Karolinska Institutet and the European Society for Paediatric Urology are hosting a master course on DSD in Stockholm, Sweden.
The programme will consist of lectures and case presentations by delegates. Registration is possible via email to marie.nurmi-johannesen@sll.se
From 5 until 7 December 2019, the sixth ENEA Workshop on ParaSellar Lesions will take place in Athens, Greece.
The European NeuroEndocrine Association is hosting the sixth workshop on ParaSellar Lesions. The online abstract submission opens on 25 January and Early bird registration is available until September 15th, 2019.
Preliminary details on the programme will become available in December, 2018.
In October 2018, Christiaan F. Mooij pubished a dissertation on Cardiovascular Risk and Steroid Metabolism in Congenital Adrenal Hyperplasia (CAH).
