Read the Endo-ERN Newsletter October 2017 now for information on events, meetings, and much more.
Newsletter October 2017
Steering Committee Meeting
The next Endo-ERN Steering Committee meeting will be held on the 14th of December, from 14:00 until 16:00 via WebEx.
Steering Committee & Advisory Board meeting 9 October
On the 9th of October, 2017, Endo-ERN held its 3rd Steering Committee & Advisory Board meeting. This meeting took place in the LUMC, Leiden, The Netherlands. Most Main Thematic Group (MTG) chairs and Work Package (WP) chairs, all ePAGs, the national coordinator of France and The Netherlands, and the ESPE representative attended.
RD-Action workshop for ERNs
RD-ACTION & DG Sante Workshop are holding a workshop for ERNs on December 6-7, in Rome, Italy.
International fund raising for congenital adrenal hyperplasia
International fund raising for congenital adrenal hyperplasia (IFCAH) is a private fund, aimed to promote research on Congenital Adrenal Hyperplasia (CAH).
RD-Action Recommended Practices for Data Standardisation
RD-Action published a document with Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks in order to collect data in a standardised manner, which will allow it to become syntactically and semantically interoperable.
ERN Info Day Rome, Italy
The Italian Ministry of Health is organising and ERN information day on October 16th in Rome, Italy at the Ministry of Health. This meeting is intended to create collaboration among the Italian RCs working on the ERN.
Newsletter September 2017
Annual meeting International Association of National Public Health Institutes
This year’s annual meeting will be hosted by the Istituto Superiore di Sanità, Rome, Italy on October 22-25, 2017.
International Congress on Research of Rare and Orphan Diseases
The International Congress on Research of Rare and Orphan Diseases will take place in Bologna, Italy, from 7th-10th March 2018.