Read the summer edition of the Endo-ERN newsletter now! The issue contains new information about Endo-ERN & EuRRECa at the ESPE2018 meeting, an update on the Clinical Patient Management System, and the first guidelines & consensus papers endorsed by Endo-ERN.
Newsletter October 2017
Read the Endo-ERN Newsletter October 2017 now for information on events, meetings, and much more.
Newsletter September 2017
The Endo-ERN newsletter covering the activities of September 2017 is now available!
CEF Telecom Application Submitted
On the 21st of September Endo-ERN applied for the 2017 CEF Telecom Call – eHealth (CEF-TC-2017-2).
After the definite approval from Eurordis in August, Endo-ERN has added 5 new patient representatives to the team.
If you are interested in becoming a patient representative, check out our How to become an ePAG web page!
Newsletter April 2017: The first General Assembly
The European Reference Networks for rare and complex diseases (ERNs) were officially installed on 9 March 2017 at the 3rd conference on Rare diseases in Vilnius, Lithuania. The first General Assembly (GA) of the European Reference Network on Rare Endocrine Conditions (Endo-ERN) was held on Monday 27 March 2017, in Leiden, The Netherlands.
The purpose of this first annual meeting was first to inform and update all members and other stakeholders on the mission, structure, and governance of Endo-ERN, and subsequently to approve the current application by the members via voting in order to be officially operational, and finally to [...]