On the 22nd of February, 2018, the second Endo-ERN General Assembly took place in Lübeck, Germany. Little under one hundred participants gathered in Lübeck for the General Assembly on the 22nd of February. Representatives of the Endo-ERN member Reference Centers, Patient Representatives, National Coordinators, representatives of ESE and ESPE, and other specifically interested persons attended. Continue reading
The Network Coordinators of the 24 European Reference Networks have written a position statement on the future involvement of the United Kingdom within ERNs. In this paper the ERN coordinators highlight the importance of the UK’s continuous involvement in ERNs. Continue reading
The CPMS webinar schedule for March 2018. We encourage all Endo-ERN members to participate.
Our application for the 2017 CEF Telecom Call – eHealth (CEF-TC-2017-2) has recently been recommended for funding, along with the other ERNs! Continue reading
Read the Endo-ERN January newsletter now! This month we were busy with enrolling our first patient into the CPMS, uploading the work-plan for year 2, attending many events, and so much more. Read the complete newsletter to find out. Continue reading
On the 24th of January the Endo-ERN coordinating office organised an ERN Symposium in the Leiden University Medical Center (LUMC). Continue reading
On the 22nd of January we attended a workshop on the Preparation of Final Technical and Financial Reports of the ERNs, organised by the CHAFEA Health and Food Safety Unit Team. Continue reading
On the 19th of January the Istituto Superiore di Sanità in Napels, Italy organised the third Endo-ERN meeting of the Italian HCPS. Both Endo-ERN coordinator Alberto Pereira and deputy coordinator Olaf Hiort attended. Continue reading
Endo-ERN has enrolled its first patient into the Clinical Patient Management System (CPMS). Continue reading
Yesterday Endo-ERN submitted the Specific Grant Application (SGA), containing the work plan of Year 2 for Endo-ERN. Continue reading