From 1-3 February, 2019 our Endo-ERN ePAGs met in Leiden, The Netherlands to discuss the patient involvement and plans in the Endo-ERN activities. Eight (of 14) ePAGs were present and one joined remotely.
The three days were well spent with discussions on topics such as:
- How to best facilitate the cooperation between patient representatives and doctors within each Main Thematic Group (MTG) and Work Package (WP) to reach Endo-ERN’s main goal of better care for all endocrine patients in Europe.
- How to best facilitate the need for in person meetings to ensure optimal patient involvement.
- Upcoming events such as the European Congress of Endocrinology and the European Congress of Paediatric Endocrinology in 2019.
Endo-ERN chair, Alberto Pereira, was present partly present to respond to questions and to take part in the discussions. On top of the meetings there was also time for a social dinner for the ePAGs to catch up with each other.