The fourth Italian Endo-ERN meeting took place on the 7th of June, in Padova, Italy. The aim of the meeting, organised by the Italian national coordinators, was to bring together Italian and European Main Thematic Group coordinators, and the Italian European Advocacy Group. Continue reading
Read the Endo-ERN April newsletter now! This edition contains the date for the Endo-ERN General Assembly 2019, more information about our stand at ECE2018, a video on CPMS, and much more! Continue reading
EuRRECa was present at the Rare Disease Registries Projects kick-off meeting in Luxembourg on 17th April. Continue reading
The European Commission has released a video on how to get started with the Clinical Patient Management System (CPMS). Continue reading
Read the Endo-ERN March newsletter now! This edition contains an EU press release on Rare Diseases day and the 1 year anniversary of ERNs, announcement of an Endo-ERN and EuRRECa stand at ECE2018, Poster presentation at ECRD and much more! Continue reading
Endo-ERN will present a poster at the European Conference on Rare Diseases and Orphan products. The poster will be presented by our European Patient Advocacy Group patient representatives Johan de Graaf, Petra Brügmann, and Diana Vitali. Continue reading
Endo-ERN will be actively present at ECE2018! On Tuesday the 22nd of May a special Endo-ERN Symposium will take place from 9:45 until 10:45 and you will be able to find us at our own exhibition stand, together with EuRRECa (The European Registry for Rare Endocrine Conditions), for the whole duration of the congress. Continue reading
The European Commission has released a press release looking back on Rare Diseases day and celebrating the 1-year anniversary of ERNs Continue reading
The CPMS webinar schedule for April 2018. We encourage all Endo-ERN members to participate.
Read the Endo-ERN February newsletter now! This past month we held our second General Assembly, the ERN coordinators wrote a position statement on the state of the UK in ERNs, and we recieved information on a new audit coming from the European Commission. Read the complete newsletter to find out more. Continue reading