BUY NOW: Handbook of ENDOCRINOLOGY and METABOLISM
The first European endocrinology textbook developed by the members of European Reference Network on Rare Endocrine Conditions (Endo-ERN).
Discover this extensive illustrated textbook of endocrinology created primarily for students and residents. Written by experts of the European Reference Network on Rare Endocrine Conditions (Endo-ERN), the Handbook of ENDOCRINOLOGY and METABOLISM describes commonly managed conditions, as well as providing information about exceptional rare endocrine conditions.
Topics covered include common conditions of the endocrine system, metabolic disorders, inherited conditions, and endocrine emergencies. With clinical application in mind, the chapters include illustrations and tables, as well as the latest information about [...]
NOW OPEN: Clinical Exchange Programme call for applications
The first call for applications for the Endo-ERN Clincial Exchange Programme is now open! Early application is encouraged with the call closing on July 1, 2024.
The ERN Clinical Exchange Programme has been designed to share knowledge, strengthen the clinical capacities across the network and to stimulate collaboration between healthcare professionals in European Reference Networks (ERNs) and beyond. The mission of Endo-ERN is to reduce present inequalities in rare disease care for patients with rare endocrine conditions.
Read more: Successful Endo-ERN General Assembly 2024
The 8th Endo-ERN was hosted in Milan by Luca Persani of Endo-ERN healthcare provider (HCP) member Istituto Auxologico Italiano – Istituto di Ricovero e Cura a Carattere Scientifico, Italy. Held April 23-24, the Endo-ERN GA was attended by nearly 150 people from 89 different HCP members and ePAGs. The event featured 15 plenary sessions with topics such as:
New grant period 2024-2027 Roadmap to Copenhagen & Transition ERDERA Landmark Integration Project JARDIN Landmark Integration Project Patient journeys European medicine shortages: How can we avoid a disaster for patients with rare conditions?
There were updates from all 9 Endo-ERN work [...]
European Hormone Day
Our colleagues at the European Society of Endocrinology have created an informative infographic for European Hormone Day: Why Hormones Matter.
REGISTER NOW: World Orphan Drug Congress 2024
Endo-ERN is delighted to be a partner of The World Orphan Drug Congress Europe. This event is the largest and most established orphan drug & rare disease event worldwide. Meet over 2000 attendees, hear from 250 leading speakers, and connect with 130 exhibitors as we bring together experts from the start-to-finish of orphan drugs. From regulation and policy, to global pricing and gene therapy.
With this partnership we are delighted to inform you that Endo-ERN members are eligible for a free VIP pass. You can apply now: http://www.terrapinn.com/WODC/ENDO-ERN
Date & Location
22 October 2024 | Pre-Congress Workshops [...]
Register ECE 2024 – rare endocrine conditions symposium
ECE 2024 will take place 11-14 May in Stockholm, Sweden. Registration is now open! The Endo-ERN project office will attend and host a booth and a symposium.
The Endo-ERN Symposium is now confirmed:
Tuesday, 14 May from 12:00-13:30
1200
Endo-ERN introduction, Prof. Alberto Pereira, Amsterdam University Medical Center, the Netherlands & Endo-ERN Coordinator
1210
Guidelines on familial hyperaldosteronism, Prof. Olaf Dekkers, Leiden University Medical Center, the Netherlands and Prof. Paolo Mulatero, University of Torino, Italy
1240
SDHB and SDHD guidelines, Prof. David Taieb, Aix Marseille University, France
1305
Pituitary tumors: Looking for patients reported outcomes [...]
Endo-ERN Newsletter April 2024
NEW ePAG: Welcome Bernd Rosenbichler
Endo-ERN is happy to welcome a new ePAG to the organisation. Bernd Rosenbichler of Alström Syndrom e.V., Germany has joined MTG3. He shares his motivation to join Endo-ERN:
“Raising a child with a rare disease is – that may come as a surprise – a gift by nature. It changes the own perspectives on life, set priorities and opens the mind for totally different things, someone would have never recognized if there wasn’t such a special person.
But of course there is as well the reality of dealing with a rare disease: feeling left alone, not knowing where to [...]
PARTNERSHIP: Endo-ERN X WODC
Endo-ERN is delighted to announce our partnership with The World Orphan Drug Congress Europe. This event is the largest and most established orphan drug & rare disease event worldwide. Meet over 2000 attendees, hear from 250 leading speakers, and connect with 130 exhibitors as we bring together experts from the start-to-finish of orphan drugs. From regulation and policy, to global pricing and gene therapy.
With this partnership we are delighted to inform you that Endo-ERN members are eligible for a free VIP pass. You can apply now: http://www.terrapinn.com/WODC/ENDO-ERN
Date & Location
22 October 2024 | Pre-Congress Workshops [...]
