Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
Read guideline on Diagnosis and Treatment of Primary Adrenal Insufficiency
Stefan R. Bornstein, Bruno Allolio, Wiebke Arlt, Andreas Barthel, Andrew Don-Wauchope, Gary D. Hammer… David J. Torpy (1 February, 2016)
Journal of Clinical Endocrinology & Metabolism, Volume 101, Issue 2, Pages 364–389
ANESTHESIA
ADRENALNET (2019)
Read guidelines on taking hydrocortisone to prevent an Addison’s crisis
Emergency regimen – Prevention of adrenal crisis in children
Alternative options for ADULTS if needed:
In case no other glucocorticoid is available dexamethasone can be used but is not recommended as the first choice treatment.
Speiser PW, Arlt W, Auchus RJ, Baskin LS, Conway GS, Merke DP… White PC. (November 2018)
Journal of Clinical Endocrinology & Metabolism , Volume 103, Issue 11, Pages 4043–4088
Lynnette K. Nieman, Beverly M. K. Biller, James W. Findling, John Newell-Price, Martin O. Savage, Paul M. Stewart, & Victor M. Montori (1 May, 2008)
Journal of Clinical Endocrinology & Metabolism, Volume 93, Issue 5, Pages 1526–1540
Lynnette K. Nieman, Beverly M. K. Biller, James W. Findling, M. Hassan Murad, John Newell-Price, Martin O. Savage & Antoine Tabarin (1 August, 2015)
Journal of Clinical Endocrinology & Metabolism, Volume 100, Issue 8, Pages 2807–2831
Jacques W. M. Lenders, Quan-Yang Duh, Graeme Eisenhofer, Anne-Paule Gimenez-Roqueplo, Stefan K. G. Grebe, Mohammad Hassan Murad… William F. Young (1 June, 2014)
Journal of Clinical Endocrinology & Metabolism, Volume 99, Issue 6, Pages 1915–1942
John W. Funder, Robert M. Carey, Franco Mantero, M. Hassan Murad, Martin Reincke… William F. Young ( 1 May, 2016)
Journal of Clinical Endocrinology & Metabolism, Volume 101, Issue 5, Pages 1889–1916,
ADRENALNET (May 2018).
Translated into English in cooperation with Endo-ERN.
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