We proudly announce that our Endo-ERN website is now available in Spanish and Portuguese.
This way, we hope to reach more patients, caretakers, medical specialists etc. closely involved in the field of rare endocrine conditions, all over Europe, all over the world.
Other languages will follow soon!
General
Rare endocrine diseases Padova meeting
On June 7th 2019, in the old Venetian villa Contarini in Piazzola sul Brenta owing to the Venetian Region Counsil, the Endocrinology Unit of Azienda Ospedaliera-University of Padova (director Carla Scaroni, MD ) organized for Endo ERN group of Padova a meeting dedicated to medical doctors involved in child- and adult-hood endocrine rare diseases.
The aim of the meeting was to ameliorate the network among different care centers in our territory to uniform the standards of diagnosis and therapy for rare disease patients.
International Rare Diseases Research Consortium
The knowledge of a raredisease is often spread throughout the world. That is why LUMC Leiden is a participant in Irdirc, a consortium with more than 40 member organizations from all over the world. In this video Prof. Aartsma-Rus explains how exactly they work together.
ERNs newsletter
The first common newsletter about all ERNs has been published by DG Health and Food Safety.
Subscribe here for the newsletter
June newsletter
Read the June edition of the Endo-ERN newsletter now! The ESPE2019 ERN symposium program is available , first common newsletter about all ERNs , talk about meetings, and much more!
Click here for the newsletter
Brexit
Updated information about the impact of BREXIT on access to IT tools and CPMS was presented by the European Commission during the 8th ERN Coordinators Group Meeting on Monday June 24th in Brussels. Please click here for the full presentation
Vacancy: International PhD programme in experimental medicine
Three year PHD programme available at Università degli studi in Milan, Italy in Experimental medicine.
Vacancy: Post doc position
The IRCCS Istituto Auxologico Italiano in Milan, Italy, has a post-doc position available in the Lab of Endocrine & Metabolic Research.
May newsletter
Read the May edition of the Endo-ERN newsletter now! We posted our pictures from ECE, talk about meetings, including the first patient meeting for Eastern European countries, and much more!
EJP RD Pillar 2 annual retreat
The Pillar 2 of the EJP RD has organized its first Annual Retreat which took place at the Istituto Superiore de Sanità (ISS) in Rome (Italy) from 22nd to 24th of May 2019.
