Members
Newsletter

Patients
Professionals
News
Events
Contact
ERN
FAQ

About
Specific Expertise
Patients
Activities
Publications

About
- About
  European Reference Network on Rare Endocrine Conditions mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine conditions in Europe, through facilitating knowledge sharing and facilitating related healthcare en research.
- About ERN
- About Endo-ERN
- Governance
- Reference Centres
- ERN Information Materials
Specific Expertise
- Specific Expertise
  According to usual classification of endocrine conditions, specific diagnostic and therapeutic approaches and composition of the required multidisciplenary teams, eight established Main Thematic Groups (MTGs) were defined within Endo-ERN.
- Overview
- Adrenal (MTG1)
- Disorders of Calcium &
  Phosphate Homeostasis (MTG2)
- Genetic Disorders of Glucose &
  Insulin Homeostasis (MTG3)
- Genetic Endocrine
  Tumour Syndromes (MTG4)
- Growth &
  Genetic Obesity Syndromes (MTG5)
- Pituitary (MTG6)
- Sex Development &
  Maturation (MTG7)
- Thyroid (MTG8)
Patients
- Patients
  Adequate patient representation and coverage of all expertise, and preferably also of the Work-Packages across all member states is top-priority for Endo-ERN. Patients are represented in the Steering Committee to ensure active patient involvement in any strategic decision and action.
- Introduction
- European Patient Advocacy Group
- How to Become an Endo-ERN patient representative
- Endo-ERN Patient Representatives
- Conditions
- Cross-border Healthcare
- Patient information materials
Activities
- Activities
  Endo-ERN activities are defined in five work packages throughout different phases.
- Knowledge Generation
- Research Activities
- Clinical Activities & eHealth
- Guidelines
- Other Projects
Publications

ERNs newsletter

Posted on July 9th, 2019July 9th, 2019

The first common newsletter about all ERNs has been published by DG Health and Food Safety.

Subscribe here for the newsletter

This entry was posted in General.

Share this item via:

Endo-ERN Newsletter

Subscribe to our email newsletter for useful information and valuable resources.

Please leave this field empty.

Recent News

EJPRD internal call for innovation projects in clinical trials methodologies information/network meeting

In the context of the EJP RD internal call for innovation projects in clinical trials methodologies in limited populations, that opened on 7th of December 2020 and will close [...]

EJPRD’s Internal call for innovation project in clinical trials methodology

The Internal Call for Innovation Project in Clinical Trials Methodology in Limited Populations has been launched on December 7, 2020. The call is open to [...]

Endo-ERN webinar: Endocrine and bone management in Duchenne muscular dystrophy

In this webinar, Dr. Jarod Wong from the University of Glasgow will review the endocrine and bone morbidity in DMD with focus on the updated [...]

Endo-ERN newsletter November 2020

The Endo-ERN newsletter November 2020 is out now! Read more about the upcoming & recording Endo-ERN webinars, New MTG8 chairs, Launch of Exchange Programme for [...]

Launch of Exchange Programme for healthcare professionals in European Reference Networks

Knowledge sharing and stimulating collaboration between health care professionals in European Reference Networks (ERN). That is the aim of the Exchange Programme 2020-2022, funded by [...]

Upcoming Events

Endo-ERN webinar: Endocrine and bone management in Duchenne muscular dystrophy

January 25^th, 2021

EJPRD internal call for innovation projects in clinical trials methodologies information/network meeting

January 25^th, 2021

17th International Pituitary Congress

February 22^nd - March 3^rd, 2021

EuRRECa annual meeting 2021

April 12^th, 2021

Endo-ERN General Assembly 2021

April 13^th - April 14^th, 2021

Endo-ERN
Coordinating Center
P.O. Box 9600
2300 RC LEIDEN
The Netherlands

info@endo-ern.eu

LinkedIn
Twitter
Facebook

Endo-ERN is a European Reference Network co-funded by the European Union’s Health Programme.

Quick Menu

Home
Contact
Newsletter
Frequently Asked Questions
Privacy
Downloads

© 2016 - 2020 Endo-ERN

Designed by: FeekDesign

Go to top