Patient Reported Outcome Measures

• Leiden Bother and Needs Questionnaire for Pituitary disease (LBNQ-Pituitary)
• CushingQoL and AcroQoL questionnaires

Leiden Bother and Needs Questionnaire for Pituitary disease (LBNQ-Pituitary)

The Leiden Bother and Needs Questionnaire for patients with Pituitary disease (LBNQ-Pituitary) is a patient reported outcome measure (PROM) that can be used to assess whether patients are bothered by the complaints related to their pituitary disease, as well as their need for support from healthcare providers for these complaints. This PROM covers five subscales i.e., Mood problems, Negative illness perceptions, Physical- and Cognitive complaints, Issues with Sexual functioning, and Issues with Social functioning, and consists of 33 items and one open-ended question. For a current overview of available translations of the LBNQ-Pituitary see below.

Using the LBNQ-Pituitary

The use of the LBNQ-Pituitary is free for non-profit purposes (e.g., clinical care, clinical research). Before using the LBNQ-Pituitary, please contact the authors to ask for permission by using the contact form below. Furthermore, the manual for scoring the LBNQ-Pituitary can also be requested via the contact form below.

LBNQ-Pituitary contact form

LBNQ-Pituitary translations

CushingQoL and AcroQoL questionnaires

The questionnaires can be requested via the contact form below and are available in the following languages:

CushingQoL and AcroQoL contact form