Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
Theme / Title | Date | Time CET | Speaker(s) | Register | View | CPMS |
---|---|---|---|---|---|---|
SOD (septo-optic dysplasia) Clinical Management and Patient Needs | 2024-01-25 | 16:30 – 18:00 hr | Evangelia Charmandari, Nienke Biermasz, Prof Mohamad Maghnie and Mehul Dattani | |||
Craniopharyngioma and hypothalamic obesity | 2023-01-31 | 16:00 – 17:30 hr | H.W. Gan, Hanneke M. van Santen, Johan De Graaf and Sebastian J.C.M.M. Neggers | |||
Central congenital hypothyroidism; clinical characteristics and cognitive outcome in early detected patients | 2021-05-12 | 14:00 – 15:00 hr | Nitash Zwaveling-Soonawala, Paul van Trotsenburg, Jolanda Naafs and Anita Boelen | |||
Pituitary Gigantism FIPA, AIP and XLAG | 2021-04-22 | 16:00 – 17:00 hr | Adrian F. Daly and Albert Beckers | |||
Development and integration of VBHC in pituitary care in an Endo-ERN reference center | 2021-04-19 | 17:00 – 18:00 hr | Nienke Biermasz and Friso de Vries |
An overview of all Webinars can be found here.
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