On October 16th from 14:00-15:00 CET, the ERN IT support will host a CPMS Webinar via WebEx, with the topic: ‘CPMS for new users: Authorisation- Authentication- First login’.
CPMS webinar
4th Conference on European Reference Networks
On November 21 and 22 the 4th Conference on European Reference Networks will take place in Brussels, Belgium. Ten participants per network are invited to attend and Endo-ERN will be present with adult and paediatric endocrinologists, as well as patient representatives.
ESPE2018
Endo-ERN was present at the European Society of Paediatric Endocrinology Meeting 2018. For the whole duration of the meeting we had a stand together with EuRRECa and there was a special Endo-ERN symposium.
RD-Connect Webinar: why should we make data FAIR
On Wednesday September 26th 15:00 CEST , Marco Roos from Leiden University Medical Center, The Netherlands, will host a webinar on Linking up all those data: why should we make data FAIR.
X-linked Hypophosphatemic Rickets (XLH)
The X-linked Hypophosphatemic Rickets (XLH) conference will take place on September 26, 2018, in Athens, Greece.
Congenital Hyperinsulinism International
The Congenital Hyperinsulinism International conference will take place on September 25 and 26, 2018, in Athens, Greece.
Newsletter Summer 2018
Newsletter Summer 2018 – erratum
IFCAH Call October 2018
The international fund Congenital Adrenal Hyperplasia (IFCAH) is opening a call for proposals in October 2018!
RD-Connect: an international platform for rare disease data analysis and data sharing
All ERN members are invited to join RD-Connect!
RD-Conntect is an EU-funded integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research. It provides user-friendly tools for data analysis and links different data types – omics (e.g. genomics), clinical information, patient registries and biobanks – into a common resource.
