On the 19th of January the Istituto Superiore di Sanità in Napels, Italy organised the third Endo-ERN meeting of the Italian HCPS. Both Endo-ERN coordinator Alberto Pereira and deputy coordinator Olaf Hiort attended.
On the 15th of January 2018, the kick-off meeting of the Rare diseases GO FAIR implementation network will be held in Leiden, the Netherlands.
FAIR data stands for Findable, Accesible, Interoperable, and Reusable. It is of great importance to ERNs that data is made available in internationally sustainable principles.
Endo-ERN has enrolled its first patient into the Clinical Patient Management System (CPMS).
Yesterday Endo-ERN submitted the Specific Grant Application (SGA), containing the work plan of Year 2 for Endo-ERN.
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Read the Endo-ERN Newsletter December 2017 now for an update on the CPMS & the scheduled educational webinars, a short report on the Steering Committee meeting in December, upcoming events, and much more.
On the 14th of December, 2017, Endo-ERN held its 4th Steering Committee & Advisory Board meeting, this time via the video conferencing tool WebEx. The meeting was attended by the Endo-ERN coordinating office, most MTG and WP Chairs, most ePAGs and several Advisory Board members.
The CPMS webinar schedule for January 2018 with links to register to participate (only registered participants will receive the link to join the webinar). We encourage all Endo-ERN members to participate.
On Janurary 17th, 2018, the LUMC is hosting a course on Maturity Onset Diabetes of the Young (MODY) in Leiden, The Netherlands.
Read the Endo-ERN Newsletter November 2017 now to find out more about the Clinical Patient Management System, the future of health, and the ERN Coordinators & Hospital Managers information day this month.
