The Network Coordinators of the 24 European Reference Networks have written a position statement on the future involvement of the United Kingdom within ERNs. In this paper the ERN coordinators highlight the importance of the UK’s continuous involvement in ERNs.
CPMS Webinar Schedule March 2018
The CPMS webinar schedule for March 2018. We encourage all Endo-ERN members to participate.
CEF Telecom Application recommended for funding
Our application for the 2017 CEF Telecom Call – eHealth (CEF-TC-2017-2) has recently been recommended for funding, along with the other ERNs!
Newsletter January 2018
Read the Endo-ERN January newsletter now! This month we were busy with enrolling our first patient into the CPMS, uploading the work-plan for year 2, attending many events, and so much more. Read the complete newsletter to find out.
Multidisciplinary workshop for pituitary tumour specialists
Capital Care for Pituitary Adenomas Leiden 2018 is organising a Multidisciplinary workshop for pituitary tumour specialists on the 7th and 8th of June, 2018.
ERN Symposium LUMC
On the 24th of January the Endo-ERN coordinating office organised an ERN Symposium in the Leiden University Medical Center (LUMC).
Workshop on the Preparation of Final Technical and Financial Reports
On the 22nd of January we attended a workshop on the Preparation of Final Technical and Financial Reports of the ERNs, organised by the CHAFEA Health and Food Safety Unit Team.
Naples third Italian Meeting of Endo-ERN
On the 19th of January the Istituto Superiore di Sanità in Napels, Italy organised the third Endo-ERN meeting of the Italian HCPS. Both Endo-ERN coordinator Alberto Pereira and deputy coordinator Olaf Hiort attended.
Kick-off Rare Diseases GO FAIR
On the 15th of January 2018, the kick-off meeting of the Rare diseases GO FAIR implementation network will be held in Leiden, the Netherlands.
FAIR data stands for Findable, Accesible, Interoperable, and Reusable. It is of great importance to ERNs that data is made available in internationally sustainable principles.
First patient enrolled CPMS
Endo-ERN has enrolled its first patient into the Clinical Patient Management System (CPMS).
