Are you living with or caring for someone affected by adrenocortical carcinoma (ACC)?
Join us for Living with ACC: Care, Support, and What’s Ahead, an engaging and informative online forum hosted by the European Society of Endocrinology (ESE) on Saturday, 4 October, 10:00-13:00 CEST.
What’s on the programme?
Session 1 kicks off with expert-led talks:
Dr. Rossella Libe (France) will cover ACC basics and current standard treatments.
Dr. Barbara Altieri (Italy) will discuss mitotane’s effectiveness and how to manage its side effects.
Guido Frisiani [...]
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Endo-ERN endorsed this upcoming meeting being hosted at the Meyer Health Campus Wednesday, 17 September, 2025.
Morning Sessions (9:30 AM – 12:45 PM)
Welcome, introduction, and objectives with Barbara Piccini
Updates on Type 1 Diabetes Screening (Sonia Toni) and Immunotherapy (Dario Iafusco)
Advances in Automated Insulin Delivery Systems and managing physical activity (Emioli Randazzo)
Insights on Supplements, Probiotics, and Nutraceuticals in Diabetes (Cristina Soci & Maria Rosaria Matera)
Clinical considerations for Transaminase Elevation in Pediatric Diabetology and the hepatologist’s role (Giuseppe Indolfi)
Networking over a light [...]
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Find out about the application process and programme of the Rare Endocrine Disease Winter School, Varna, Bulgaria Saturday 28 Febuary – Tuesday, 3rd March, 2026. This RED Winter School will feature international speakers from Endo-ERN. A small group of a maximum of 30 participants will be treated to diverse sessions including lecturers, case presentations, roundtable discussions and plenty of time to interface with international experts.
Agenda topics will cover all Endo-ERN Main Thematic Groups (MTGs) providing a well rounded experience for those intersted in learning more about rare endocrine conditions.
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Save the date for the 13th edition of the European Conference on Rare Diseases & Orphan Products (ECRD 2026) planned for 3-4 June, 2026. the even will be in held in-person in Prague and online.
ECRD is the largest, patient-led policy-shaping conference for rare diseases in Europe. ECRD is an instrumental tool to achieve policy objectives for people living with a rare disease. The overarching title of ECRD 2026 is: Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases
ECRD 2026 will mark the launch of a [...]
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Save the date and register now for this upcoming Workshop on Patients’Rights and Rare Disease in the European Union. Check out the agenda and register for online participation or you can attend in person in Prague, Czechia.
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REGISTER now for this webinar scheduled for Tuesday, 7 October 17:00-18:00 (CEST).
This webinar will discuss pathophysiology, diagnosis and clinical management of TSH resistance.
Chair MTG8 co-chair Edward Visser, the Netherlands
Presentation outline:
Luca Persani Italy: Introduction (5 minutes) Elisa Grassi: Genetic and molecular studies (10 minutes) Simone Rodolfi: Diagnostic flow-chart (10 minutes) Irene Campi: TSH resistance to treat, yes or no? (10 minutes) Alice Casiraghi: presentation of the survey questions (10 minutes) Final discussion (10 minutes)
There will be time for questions with the experts at the end. If you cannot attend please register anyway [...]
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Register now for this webinar on 20 October 15:00-16:00.
Primordial dwarfism, comprises a group of rare disorders where normal human growth does not occur in utero, through childhood and adolescence resulting in severe short stature in adulthood. In recent years several associated syndromes have been described. This session will cover an update on the genetics and phenotypical aspects of primordial dwarfism and syndromic associations.
Chaired by MTG5 co-chair Susan O’Connell, Ireland
Speaker: Andrew Jackson, Programme Leader at the MRC Human Genetics Unit, University of Edinburgh, Scotland
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Register now for this upcoming #raredisease webinar organised by Endo-ERN. Taking place on Monday, 22 September at 17:00-18:15 CEST.
Introduction and Opening Remarks Chairs: Prof. M. Bonomi, Prof. C. Gravholt, Dr. H. Claahsen – 5 min
Precision Medicine in CHH: Genetic Diagnosis and Emerging Biomarkers
Speaker: Dr. B. Cangiano (University of Milan, Milan, Italy) – 20 min Reversal of CHH: Clinical Predictors and Management Strategies
Speaker: Prof. A.A. Dwyer (Boston College & Massachusetts General Hospital, Boston, USA) – 20 min Induction of Fertility in Male Patients with CHH
Speaker: Dr. C. Jayasena (Imperial College London, London, UK) [...]
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