To help Endo-ERN members plan more effectively, recurring meetings have been set for some of the MTGs. see our manual
HERE NOTE: no file found

MTG experts will receive an invite directly. If you do not please contact the CPMS helpdesk.

MTG1: Every 2 months, 1st Thursday @1500

Thursday 7 Sep @15:00

Click for more info NOTE: no file found


MTG2: Every month, 2nd Monday @13:00

Monday 11 Sep @13:00

Click for more info NOTE: no file found


MTG3: Every [...]

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REGISTER: European Consortium of Lipodystrophies (EClip) IV symposium

The programme for the next installment of EClip is now available! Featuring international speakers topics include:

Mechanisms underpinning adipose dysfunction and metabolic disease in generalized lipodystrophy The adipocyte response to ionizing radiations New human leptin variants Current status of the EClip Registry


Full Programme (, 2 MB)


To register please email:

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CONTRIBUTE: Rare Barometer Newborn Screening

The new Rare Barometer survey on newborn screening for rare diseases is now live!

It should take no more than 20 minutes to complete and closes on July 23, 2023.

Through asking questions on the possible benefits and disadvantages of screening newborns for rare diseases, for example in terms of anxiety, access to care or adjustments to family life, we will make sure that your opinion is taken into account when shaping the future of newborn screening.

This survey is open to people living with a rare disease and their family members from any country in the world. It [...]

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OPPORTUNITY: Post-doc position at IRCCS Istituto Auxologico Italiano

Two exciting opportunities are available at one of Endo-ERN’s reference centres!

Both positions are available at the laboratory of Prof. Luca Persani at Istituto Auxologico Italiano – Istituto di Ricovero e Cura a Carattere Scientifico (Milan, Italy) to work in the field of congenital thyroid disorders.

You will find a detailed job description and application instructions here: APPLY NOW (, 339 KB)



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CONTRIBUTE: Survey exploring testosterone methodology

You are kindly invited to participate in a survey exploring testosterone methodology in clinical units and laboratories throughout Europe. Endo-ERN members UZ Leuven and Ghent University Hospital are managing the survey.

Currently, different methods are used to measure testosterone and SHBG, hampering harmonized clinical use of (free) testosterone. With this survey, we want to map current clinical practices on methods to measure testosterone and SHBG in clinical units and laboratories in Europe.

The results of this survey will be used to propose harmonization efforts for testosterone and SHBG measurements.

Access the [...]

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Save the date WEBINAR: Non-classic CAH – an underdiagnosed condition

Save the date for this informative and wide-ranging webinar that will be presented by:

Associate Professor Henrik Falhammar
Senior Consultant Endocrinologist & General Physician
Director of Research and Education
Karolinska University Hospital, Sweden


Department of Molecular Medicine and Surgery
Karolinska Institute, Sweden

Register using the link below. If you cannot attend register and you will be sent the recording.

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NEW DATE for Endo-ERN Endorsed Event: 4th CAre for PITuitary Adenoma Leiden (CAPITAL) Course

Endo-ERN has endorsed an upcoming course by Endo-ERN HCP, Leiden University Medical Center (LUMC).

The 4th CAre for PITuitary Adenoma Leiden (CAPITAL) Course will be held March 21-22, 2024 at LUMC. This event is attended by experienced neurosurgeons, endocrinologists, and other professionals from all over the world. During these two days the focus is on improving outcomes for patients with pituitary adenoma.

Course directors Nienke Biermasz (ENT), Marco Verstegen (NS), Wouter van Furth (NS) & Leontine Bakker (ENT) have composed an interesting program with fantastic faculty.

The programme highlights include:

Obtaining quality and remission in acromegaly The prolactinoma experience Bridging [...]

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Register ECE 2024 – rare endocrine conditions symposium

ECE 2024 will take place 11-14 May in Stockholm, Sweden. Registration is now open! The Endo-ERN project office will attend and host a booth and a symposium.

The Endo-ERN Symposium is now confirmed:

Tuesday, 14 May from 12:00-13:30


Endo-ERN introduction, Prof. Alberto Pereira, Amsterdam University Medical Center, the Netherlands & Endo-ERN Coordinator


Guidelines on familial hyperaldosteronism, Prof. Olaf Dekkers, Leiden University Medical Center, the Netherlands and Prof. Paolo Mulatero, University of Torino, Italy


SDHB and SDHD guidelines, Prof. David Taieb, Aix Marseille University, France


Pituitary tumors: Looking for patients reported outcomes not [...]

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EJP RD/ERN WORKSHOPS: CDH1 Related Hereditary Diffuse Type Gastric Cancer: the shift from prophylactic total gastrectomy to optimal endoscopic surveillance

Calling all experts interested in exploring the psychological, molecular, and administrative aspects of CDH1-related hereditary diffuse type gastric cancer! This workshop will offer invaluable insights into the latest research findings and best practices in patient care. The registration for this upcoming ERN workshops is now open:
CDH1 Related Hereditary Diffuse Type Gastric Cancer: the shift from prophylactic total gastrectomy to optimal endoscopic surveillance


Registration deadline 15 July 2023

Learn more and register using the link below.


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