The Translational Science of Rare Diseases – From Rare to Care III symposium, hosted by the BMBF-funded German Research for Rare network, will take place from April 11 to 13, 2018 in Tutzing. Continue reading
On November 4th, 2017, EU commissioner Dr. Vitenyis Andriukatis was in Milan to attend the G7 health forum and led a discussion on the future of health, big data, articial intelligence, and potential benefits to patients. Continue reading
Read the Endo-ERN Newsletter October 2017 now for information on events, meetings, and much more. Continue reading
The next Endo-ERN Steering Committee meeting will be held on the 14th of December, from 14:00 until 16:00 via WebEx. Continue reading
On the 9th of October, 2017, Endo-ERN held its 3rd Steering Committee & Advisory Board meeting. This meeting took place in the LUMC, Leiden, The Netherlands. Most Main Thematic Group (MTG) chairs and Work Package (WP) chairs, all ePAGs, the national coordinator of France and The Netherlands, and the ESPE representative attended. Continue reading
RD-ACTION & DG Sante Workshop are holding a workshop for ERNs on December 6-7, in Rome, Italy. Continue reading
International fund raising for congenital adrenal hyperplasia (IFCAH) is a private fund, aimed to promote research on Congenital Adrenal Hyperplasia (CAH).
RD-Action published a document with Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks in order to collect data in a standardised manner, which will allow it to become syntactically and semantically interoperable. Continue reading
The Italian Ministry of Health is organising and ERN information day on October 16th in Rome, Italy at the Ministry of Health. This meeting is intended to create collaboration among the Italian RCs working on the ERN.
The Endo-ERN newsletter covering the activities of September 2017 is now available! Continue reading