The Endo-ERN General Assembly (GA) is planned for April 23-24, 2024 in Milan, Italy.
Check out the current programme and additional logistical information at the event hub on our website.
Invitations were sent directly the first week of December. If you have any questions please feel free to email the Endo-ERN project office.
Endo-ERN endorsed this upcoming meeting being hosted at the Meyer Health Campus February 7, 2024.
This proves to be an informative day covering such topics as:
Obesity and CV Risk In Pediatric Age: Prevention and Therapy Multiple Daily Injection (MDI) Therapy: Evolution and New Scenarios New Metrics of Type 1 Diabetes Control and New Therapy Target Efficicay and safety of Automated Insulin Delivery Systems During Intercurrent Illness Autoimmune Polyendocrine Syndromes: When Diabetes Is In Company Lipodystrophic Syndromes: Causes, Consequences (and remedies) Of The Lack of Adipose Tissue
You will find the full list of topics and speakers in [...]
Endo-ERN has endorsed the upcoming I-DSD Symposium being held in Stockholm, Sweden 26-28 June, 2024.
A panel of international experts will present on a variety of topics such as:
Evidence driven care in CAH Epidemiology and genetics of AID Androgen Insensitivity Syndrome
Check out the outline programme.
Register now for this informative webinar that will feature paediatric and adult aspects including transition. As well as the all important patient perspective and future perspectives. There will be a chance to ask your questions directly to these international experts.
Introduction & Welcome
Chaired by Evangelia Charmandari, Professor of Pediatric and Adolescent Endocrinology, Aghia Sophia Children’s Hospital, Athens. Greece
Nienke Biermasz, Professor of Endocrinology, Pituitary Endocrinologist. Leiden University Medical Centre, Leiden, the Netherlands
SOD: Clinical Diagnosis with a Focus on the Endocrine and MRI Aspects
Mohamad Maghnie, Professor of Pediatrics and Director of Pediatric Residency Program, [...]
January 25 – this event has been cancelled.
Register now for this upcoming event on 10 February, 2024 at the Bolton Stadium Hotel, Bolton (near Manchester).
The theme for this Seminar Day is Sharing information for better understanding of heart & fertility risks in TS.
This is an opportunity to hear from heart, fertility and endcrine experts with TS knowledge to share. We will also hear personal stries from individuals who have TS.
Check out the full programme Seminar Day TSSS and register using the link below.
January 25 – this event has been cancelled.
Register now for this upcoming event on 9 February, 2024 at the Bolton Stadium Hotel, Bolton (near Manchester).
The theme for this Education Day is Collaborating for better understanding of heart & fertility risks in TS.
This is a full-day education programme with an opportunity to submit a 10-minute oral presentation or a poster. It is a rare opportunity to meet colleagues with TS Specialist knowledge to share. And also hear personal stories from individuals who have TS.
Check out the full programme.Meet the Expert Day Feb 9 [...]
As we come to the end of 2023, we want to reminder all members that a minimum of 1 patient virtual consultation should be held per member healthcare provider.
This can include a virtual meeting or just seek written opinions within the CPMS. If you wish to set up a meeting we recommend to first check you relevant MTG regular meeting slots.
Endo-ERN ePAG Diana Kwast-Hoekstra was recently appointed to the Therapies Scientific Committee of the International Rare Disease Research Consortium (IRDiRC).
“With my nomination and involvement I will be happy to take my acquired knowledge and experiences as a nurse scientist and ePAG at European level and bring it to the attention of the other members of the TSC, in order to achieve the goals of the IRDiRC as much as possible. In my opinion, knowledge and experiences know no boundaries and should always be used to improve care for people with rare conditions.”
The IRDiRC teams up with [...]
Find out about the EuRR-Bone registries at this upcoming webinar on Wednesday, December 13 from 1600 CET.
Organisers: European Calcified Tissue Society and ERN BOND
Speaker: Dr. Natasha Appelman-Dijkstra, Leiden University Medical Center, Leiden, The Netherlands.
Hosts: Prof. Martine Cohen-Solal, French Institute of Health and Medical Research Paris, France & Dr. Mariya Cherenko, Leiden University Medical Center, Leiden, The Netherlands.
Learning Objectives Learn about the registries Obtain knowledge about the legal/ethical issues concerned with registries Practical instruction on how to enter data Learn about the latest registry data Agenda
Introduction by Prof. Cohen-Solal (3 min)
Drug shortages and drug repurposing are hot topics in the rare disease community as highlighted by Endo-ERN ePAG Joahn de Graaf at the Endo-ERN symposium at EPSE in September..
New IRDiRC board member Diana Kwast kindly shared this resource that might of interest the the wider rare endocrine disease community.
The commentary IRDiRC Drug Repurposing Guidebook: making better use of existing drugs to tackle rare diseases has been published in Nature Reviews Drug Discovery.
This guidebook, authored by the IRDiRC Task Force “Drug Repurposing Guidebook” facilitates drug repurposing for [...]