Exciting opportunities are available at one of Endo-ERN’s reference centres!
Several PhD postions are available at the University of Lubeck’s Collaborative Research Center (CRC) 1665. Sexdiversity – Determinants, Meaning and Effects of Gender Diversity in Socialcultural, Medical and Biological Contexts is dedicated to researching the diversity of biological sex over the next four years.
Check out more information about CRC 1665 and the available positions.
On the occasion of the World Rare Disease Day, 29 February, 2024, the Ministry for Health of Malta, is hosting a one-day workshop on Cross-border Healthcare, Patients’ Rights and Rare Disease.
This workshop is being organised in collaboration with the European Commission and is being held under the auspices of the President of the Republic of Malta, His Excellency Dr. George Vella. Foreign and local speakers, including individuals with rare disease, will be coming together to share their personal experiences and provide updates on these important, under-recognized aspects of health care.
The Continuous Monitoring exercise for Endo-ERN HCPs (Full Member and Affiliated Partners) for 2023 data will run from January 1- February 29, 2024.
You should’ve received an email with all the relevant information. You can also refer to this webpage and if you have further questions contact the Endo-ERN project office.
The European Society of Endocrinology (ESE) and the European Society for Paediatric Endocrinology (ESPE) are joining forces to create a unique joint Congress in 2025.
This very special joint Congress is themed Connecting Endocrinology Across the LIfe Course and will be held 10-13 May, 2025 in Copenhagen, Denmark.
The Endo-ERN symposium is scheduled for Tuesday, 13 May, 10:30-12:00 in Hall A.
Session chairs: Alberto Pereira & Olaf Hiort, Endo-ERN co-coordinators
10:30-10:50 Endo-ERN: a key player in the triad with the European
Endocrine Societies
Alberto Pereira, the Netherlands & Olaf Hiort, Germany
10:50-11:10 Transversal Working [...]
As part of the training activities proposed by EJP RD, an 3-day training course on Training on strategies to foster solutions of undiagnosed rare disease cases is being organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP RD partners. The training will be held in Rome, Italy on 13-15 March 2024.
Through the presentation of sample use cases that have long eluded diagnosis, the course will provide participants with with useful tools, instruments and knowledge on novel strategies to foster solutions of undiagnosed rare diseases cases. Moreover, the course will facilitate networking among professionals [...]
Endo-ERN experts will present a case-based discussion on Tuesday, 23 January at 1500-1600 CET.
Chairman: Prof Luca Persani, Istituto Auxologico Italiano – Istituto di Ricovero e Cura a Carattere Scientifico, Italy
Speakers Dr Irene Campi, Istituto Auxologico Italiano – Istituto di Ricovero e Cura a Carattere Scientifico, Italy and Dr Edward Visser, Erasmus MC, University Medical Center Rotterdam, the Netherlands
1500-1515 Brief introduction Prof Luca Persani
1515-1545 Case-based discussion with Dr Campi and Dr Visser
1545-1600 Q&A
The ECRD is the largest, patient-led rare disease policy-shaping event held in Europe. This event will take place 15-16 May, 2024 at The Square in Brussels.
By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicicans, regulators and Member State representatives, EURORDIS harnesses the power of this extensive network to shape goal-driven rare disease policies of the future.
Check out the programme for more information.
Interested in submitting an abstract? The deadline is 23 February and more details can be found here.
The Endo-ERN General Assembly (GA) was held April 23-24, 2024 in Milan, Italy.
You can can find the archive including the programme and presentations here.
Endo-ERN endorsed this upcoming meeting being hosted at the Meyer Health Campus February 7, 2024.
This proves to be an informative day covering such topics as:
Obesity and CV Risk In Pediatric Age: Prevention and Therapy Multiple Daily Injection (MDI) Therapy: Evolution and New Scenarios New Metrics of Type 1 Diabetes Control and New Therapy Target Efficicay and safety of Automated Insulin Delivery Systems During Intercurrent Illness Autoimmune Polyendocrine Syndromes: When Diabetes Is In Company Lipodystrophic Syndromes: Causes, Consequences (and remedies) Of The Lack of Adipose TissueYou will find the full list of topics and speakers in [...]
Endo-ERN has endorsed the upcoming I-DSD Symposium being held in Stockholm, Sweden 26-28 June, 2024.
A panel of international experts will present on a variety of topics such as:
Evidence driven care in CAH Epidemiology and genetics of AID Androgen Insensitivity SyndromeCheck out the outline programme.
