The European Rare disease research Coordination and support Action (ERICA) Project received a positive evaluation for a H2020 grant of 2.3 million to establish a structural framework in support of the research activities of the ERNs.

ERICA will strengthen research and innovation capacity by integration of ERN research activities, outreach to European research infrastructures to synergistically increase impact and Innovation. This will result in safe, accessible and efficient access of therapies for the benefit of patients suffering from rare diseases and Conditions.

Rare diseases

Rare diseases are defined as diseases that affect not more than 1 person per 2000 in [...]

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The video explains to patients affected by rare, low prevalence and complex diseases what the European Reference Networks (ERN) are and how they might support them to identify diagnosis or treatment, in the case their health professional considers the support of the ERNs is necessary.

Click here to view the video with subtitles in all EU languages and Norwegian.

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The Endo-ERN newsletter of September 2020 is out now! Read more about planned medical treatment abroad, Endo-ERN webinars, EJP RD calls and upcoming virtual events.

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As part of its educational activities, EJP RD runs a Research Mobility Fellowship Programme dedicated to young researchers in the European Reference Networks (ERNs). PhD students and medical doctors in training from ERN member and Affiliated Partner institutions can apply for funding of short-term (1 to 3 months) training visits at another ERN center outside their country of residence. The aim of the programme is to foster the acquisition of skills and knowledge relevant to rare disease research. Both clinical and translational research projects are eligible for funding.

The first round of applications has been concluded successfully in July 2020. [...]

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EJP RD – Second Research Training Workshop call is now open

The call is open from the 31st August until 28th of September 2020

The goal of the workshops is to train researchers and clinicians affiliated to ERN-Full Members or – Affiliated Partners in relevant topics on rare diseases research. Training themes may include innovative research methodologies, diagnostic research methodologies, interdisciplinary treatment approaches, such as gene therapy and transplantation, etc. Moreover, the workshops will be aiming to provide a cross-ERN added value.

The workshops will be delivered as two-day events. Topics can be proposed by clinicians/investigators affiliated to ERN-institutions or [...]

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We proudly announce that a list of publications related to Endo-ERN is now available on our website!

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