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    • Adrenal (MTG1)
    • Disorders of Calcium &
      Phosphate Homeostasis (MTG2)
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      Insulin Homeostasis (MTG3)
    • Genetic Endocrine
      Tumour Syndromes (MTG4)
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      Maturation (MTG7)
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  • About
    • About
      European Reference Network on Rare Endocrine Conditions mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine conditions in Europe, through facilitating knowledge sharing and facilitating related healthcare en research.
    • About ERN
    • About Endo-ERN
    • Governance
    • Reference Centres
    • ERN Information Materials
  • Specific Expertise
    • Specific Expertise
      According to usual classification of endocrine conditions, specific diagnostic and therapeutic approaches and composition of the required multidisciplenary teams, eight established Main Thematic Groups (MTGs) were defined within Endo-ERN.
    • Overview
    • Adrenal (MTG1)
    • Disorders of Calcium &
      Phosphate Homeostasis (MTG2)
    • Genetic Disorders of Glucose &
      Insulin Homeostasis (MTG3)
    • Genetic Endocrine
      Tumour Syndromes (MTG4)
    • Growth &
      Genetic Obesity Syndromes (MTG5)
    • Pituitary (MTG6)
    • Sex Development &
      Maturation (MTG7)
    • Thyroid (MTG8)
  • Patients
    • Patients
      Adequate patient representation and coverage of all expertise, and preferably also of the Work-Packages across all member states is top-priority for Endo-ERN. Patients are represented in the Steering Committee to ensure active patient involvement in any strategic decision and action.
    • Introduction
    • European Patient Advocacy Group
    • How to Become an Endo-ERN patient representative
    • Endo-ERN Patient Representatives
    • Conditions
    • Cross-border Healthcare
    • Patient information materials
  • Activities
    • Activities
      Endo-ERN activities are defined in five work packages throughout different phases.
    • Knowledge Generation
    • Research Activities
    • Clinical Activities & eHealth
    • Guidelines
    • Other Projects
  • Publications

General

ERN Symposium LUMC

Posted on January 27th, 2018February 12th, 2018

On the 24th of January the Endo-ERN coordinating office organised an ERN Symposium in the Leiden University Medical Center (LUMC). Continue reading →

This entry was posted in ERN, EU, General.

Workshop on the Preparation of Final Technical and Financial Reports

Posted on January 23rd, 2018February 9th, 2018

On the 22nd of January we attended a workshop on the Preparation of Final Technical and Financial Reports of the ERNs, organised by the CHAFEA Health and Food Safety Unit Team. Continue reading →

This entry was posted in ERN, EU, General.

Naples third Italian Meeting of Endo-ERN

Posted on January 20th, 2018February 9th, 2018

On the 19th of January the Istituto Superiore di Sanità in Napels, Italy organised the third Endo-ERN meeting of the Italian HCPS. Both Endo-ERN coordinator Alberto Pereira and deputy coordinator Olaf Hiort attended. Continue reading →

This entry was posted in ERN, General.

First patient enrolled CPMS

Posted on January 12th, 2018January 12th, 2018

Endo-ERN has enrolled its first patient into the Clinical Patient Management System (CPMS). Continue reading →

This entry was posted in ERN, EU, General.

Specific Grant Application Year 2 submitted

Posted on January 10th, 2018

Yesterday Endo-ERN submitted the Specific Grant Application (SGA), containing the work plan of Year 2 for Endo-ERN. Continue reading →

This entry was posted in ERN, EU, General.

Endo-ERN is now on Facebook!

Posted on January 9th, 2018

You can Like the Facebook page here to stay updated on news regarding ERNs, Endo-ERN, Paediatric and Adult Endocrinology, meetings and workshops, and much more.

This entry was posted in ERN, General.

Newsletter December 2017

Posted on January 8th, 2018February 9th, 2018

Read the Endo-ERN Newsletter December 2017 now for an update on the CPMS & the scheduled educational webinars, a short report on the Steering Committee meeting in December, upcoming events, and much more. Continue reading →

This entry was posted in ERN, General.

Steering Committee & Advisory Board meeting 14 December

Posted on January 3rd, 2018January 3rd, 2018

On the 14th of December, 2017, Endo-ERN held its 4th Steering Committee & Advisory Board meeting, this time via the video conferencing tool WebEx. The meeting was attended by the Endo-ERN coordinating office, most MTG and WP Chairs, most ePAGs and several Advisory Board members. Continue reading →

This entry was posted in ERN, General.

CPMS Webinar Schedule January 2018

Posted on December 18th, 2017January 2nd, 2018

The CPMS webinar schedule for January 2018 with links to register to participate (only registered participants will receive the link to join the webinar). We encourage all Endo-ERN members to participate.

Continue reading →

This entry was posted in General.

Newsletter November 2017

Posted on December 6th, 2017January 2nd, 2018

Read the Endo-ERN Newsletter November 2017 now to find out more about the Clinical Patient Management System, the future of health, and the ERN Coordinators & Hospital Managers information day this month. Continue reading →

This entry was posted in General.
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