This week the proposal for the European Registries for Rare Endocrine Conditions (EuRRECa) was approved by the European Commission.
European Registries for Rare Endocrine Conditions
CEF Telecom Application Submitted
On the 21st of September Endo-ERN applied for the 2017 CEF Telecom Call – eHealth (CEF-TC-2017-2).
New ePAGS
After the definite approval from Eurordis in August, Endo-ERN has added 5 new patient representatives to the team.
If you are interested in becoming a patient representative, check out our How to become an ePAG web page!
ENDO 2018
The 2018 ENDO meeting will take place on March 17-20, 2018 in Chicago, United States.
ESPE 2018
The 57th Annual European Society of Paediatric Endocrinology Meeting will be held 27-29 September 2018 in Athens, Greece.
ECE 2018
The 20th European Congress of Endocrinology will be held from 19 – 22 May 2018 in Barcelona, Spain.
General Assembly 2018
The second General Assembly will be held on Thursday the 22nd of February 2018, in Lübeck, Germany.
Newsletter August 2017
The Endo-ERN August 2017 newsletter covering the activities of Endo-ERN for the past months is now available!
After only 5 months of being operational the European Reference Network on rare Endocrine conditions (Endo-ERN) has made a lot of progress. These months have been directed at deciding a specific strategy for active recruitment of engaged members. This was initiated at the first General Assembly in March 2017 by the sign up lists of interested members in work packages and this has continued since then. The Main Thematic Group (MTG) chairs and the Work Package (WP) chairs have steered the identification of [...]
General Assembly 2018
The second Endo-ERN general assembly will be held in Lübeck, Germany on Thursday the 22nd of February, 2018!
Last year the LUMC in Leiden hosted the general assembly. This year Universitätsklinikum Schleswig-Holstein in Lübeck, will be the host. All 71 RCs part of Endo-ERN will be represented at this General Assembly.
More details on the programme will follow later.
Future call
The first ERNs were launched in March 2017, involving more than 900 highly-specialised healthcare units from over 300 hospitals in 26 Member States. The 24 established networks are now developing their joint activities on rare and complex diseases. Once this structure has been put into place the opportunity is expected to arise to create more ERNs and for RCs to join existing ERNs.
